I am seriously over this crud! Guys, I’m still hacking and coughing. I am beginning to wonder what in the heck is going on. Seriously! I’ve had, thus far, 2 Decadron shots, 2 rounds of Prednisone, 2 different antibiotics, every anti-allergy med known to man in varying and increasing doses, dual-dose nebulizer treatments throughout, Dulera inhaler, and Flonase spray along with whatever other OTC/vitamin supplements that are supposed to help. There have been changes, sometimes from day to day, in how this “is”…whether the secretions are thick or thin, whether the congestion seems loose or tight, the cough “wet” or dry, etc. but overall, there’s really not a whole heckuva lot of improvement.
It’s driving me nuts. Besides absolutely wearing me out. I’m exhausted. The house is beyond hopeless and I’m stuck in it all day. I have not stepped foot outside the house since I went to the allergist on Thursday. I opened the back door to wave at one of the boys in the yard. That’s as “outside” as I have been.
I’m scheduled for allergy testing on the 13th which is too stinkin’ long to live with this after I’m past a month with it already. I’m considering trying to get in with a pulmonologist. I mean, I’m sure I need the allergy testing anyway, but I’m wondering if there’s not some lung issue. Why are the steroids not more effective? I mean, I’ve taken them often enough over the years, not often, but enough times to know that they normally produce a noticeable improvement within a couple of days. But with this? No such thing. And I’m sitting here wondering if I should finish up this last course of Prednisone I have. I mean, that stuff jacks my sugars up so bad. It’s like insulin has no effect on it almost. I raise my temp basal as high as it will go, 173% and STILL have to override the boluses to give 2-4 more units of insulin to cover my food. Well, not cover it even, just to keep it below 200.
I’m thankful to have the CGM now so I can keep on top of what my sugars are doing while the steroids jack with my sugars. I shudder to think of how bad they have been in the past when I didn’t have a way to keep such a constant watch on them. Ugh! At the same time, though, watching them stay up there while I’m “throwing” insulin at it as hard as I can is just maddening and more than a little scary. I don’t know about any of you guys, but when I know my sugars are up and I can’t get them down (quick enough to suit me, of course) all I can think about is all the damage being done. All the blood vessels being clamped shut and nerves being killed out or whatever goes on in there while there’s an overabundance of sugar floating around. It drives me nuts!
So here I am. Still hacking, still unable to speak with my actual voice. It’s more like I’m doing the voice of some alien monster thing complete with alternate growling and shrieking. I just wanna get well, y’all. Is that too much to ask?
Alright. Like I said, I’m not a whiner, so I guess I’d better shut this down before I become one. heh Maybe that should be, “I TRY not to be a whiner”? Yeah, probably so.
Ah well…I’m not changing it now! ha ha
I hope none of you guys are this sick. I guess I’ll update you if I get in with a lung doc next week. For someone who never worked in an environment that was potentially lung-damaging or who never smoked (other than a couple months in high school), it sure seems odd to me that this would be some lung issue. It honestly seems like it should be entirely allergy related. But then that brings the question of why in the world aren’t the meds helping, then? I have always been weird with medicines…either it takes a ton of it to work for me (pain meds) or I’m allergic to them (antibiotics) or they stop working…?? Why would that happen? It’s not like I’ve ever taken steroids for long periods of time. I have had them several times over the years, but not for extended periods or even frequently, so what gives?
Argh. I give up. It’s scary to think that there’s some (other/more) weird thing going on that is causing my body to no longer respond to these medicines. What do you do when nothing will heal you? Um…die?
Gah. I need to stop thinking about this. And I need some answers…and um, some relief. “and that’s all I need…” ~Navin R. Johnson
This is an update to my last “health” post sick again, naturally.
I made it to the allergist in one piece. Turns out this was the same office I’d been to in another town. This doc has offices in a couple other towns, and I couldn’t remember the name of the doctor to save my life! So anyhow, that meant they had my last scratch test results and other info. It wasn’t quite three years ago since that last visit, so they didn’t redo the scratch test again. I was VERY thankful for that!
I saw the PA, who I liked very well. She said it sounded like I just really needed some maintenance meds for the asthma. She gave me a steroid inhaler and a refill for the albuterol for my nebulizer. I’m supposed to take it twice a day along with another similar medicine, iprapropium. Boy, does it make me jittery! I’d never had much of a reaction with albuterol alone, but the two of them together make my heart race and feel like I’m gonna crawl out of my skin. I hate it!
The steroid is the nastiest thing I’ve ever tasted! She gave me a sample of it so I’m stuck with it for awhile, but my insurance won’t cover it so I’ll have to get some other similar inhaler after this runs out.
I’m not sure if she’s planning to keep me on that one for maintenance or not. Not sure what kind of affects inhaled steroids have so I need to research that.
She also gave me antibiotics, my usual after I told her it’s the only one that seems to work for me…Keflex. It seems to be doing the job. I still have plenty of coughing, but not the violent fits where I can’t get a breath.
So…for my own benefit, there’s the update. Finally doing better and I’m SO thankful!
I am used to being sick. I mean, I do have type 1 diabetes. That is a moment-to-moment adventure of a roller coaster ride way to live. But I do it. I am not bitter about having to do it. God gave this to me for some reason that is meant to glorify Him, so it’s all good. Hear me when I say that I do not believe I am cursed by having this disease.
This isn’t about diabetes, though. I have been dealing with a massive, monstrous sinus infection and asthma flare for over a month now. I’M TIRED of it!! Argh!
After FINALLY getting the doctor to give me a Rocephin shot and a different oral antibiotic, I at last started to get over the horrendous throat and ear pain I’d dealt with for over a week, but it took much longer to get over this mess…and I’m still trying to do that. I have the (apparently) obligatory lingering hacking cough hanging on.
For clarity, I was put on blood pressure medicine at least 10 years ago. Not because I had high blood pressure. Not by “normal people” standards. You see, if you are a diabetic the standard limits and tables for determining an acceptable blood pressure (or cholesterol or ANYthing else) do not apply. No, what would be an acceptable bp level for you will be considered much too high for me. In order to protect my kidneys, when my bp was within “acceptable” levels for you, I was put on the meds. T1D’s are much more susceptible to kidney disease and failure, so protecting them while they’re still healthy is a big deal. However, the bp medicine they put me on, an ACE inhibitor, a very mainstream one, over about a 7-year period caused an awful hacking cough to develop. Ever since then, I’ve had problems with my lungs. *sigh*
I was taken off that medicine and put on a different type of bp med… this happened over and over. A couple of times, because I get tired of trying to keep up with all the different medicines I’ve been on AND because the names of the drugs are changed, after going to a new doctor, I have been put back on an ACE inhibitor…and shortly thereafter, the coughing would resume.
Realize this isn’t your garden-variety coughing I’m talking about. This is hacking til you can’t breathe then you choke and throw up type of coughing. I was sent to an allergist at one point who did a lot of tests and told me (of course) that I was allergic to a ton of things and diagnosed me with asthma.
I’ve said for years that I have asthma, but I don’t really wheeze. I cough my brains &/or lungs out unless I get completely out of breath, THEN the sort-of wheezing starts, but it’s more of a squeal when I try to inhale. Yeah, I do EVERYthing differently. Ha ha…
And so, that’s where I am right now. I have FINALLY gotten well enough to attempt riding my bike again. I have been trying to build up for the past week and a half. I could only do a few miles the first time before I just gave out. The next time, I got in about 9 miles. Then 12, then 14… I had a really bad (stubborn) low blood sugar once and had to wait for Hubby to ride back and come get me in the truck (more on that in another post…it was a really weird experience)
So this past Friday, Hubby and I went out on our own and I was able to get 17 miles in without dying. (ha!) Then on Sunday afternoon, between attending/working as altar counselors both services at church, eating lunch and going back at 6 pm for a meeting, I was able to do 20 miles. Granted, I almost hawked up a lung doing it, but I did it.
It was nice to even FEEL like working hard to get those miles in. Praise God! But now I’m getting concerned about my stinking lungs. I’m now on amlodipine, a ccb drug (calcium channel blocker) that helps widen blood vessels to lower blood pressure. It’s one of the few blood pressure meds that don’t have coughing as a side effect, and if I take it at night, it doesn’t seem to bother me at all, thank God, because now that I’ve had to take these things for so long, I can’t seem to go off them without my blood pressure going up to what is considered high for even “normal” people. Great. 🙁
I realized last week that I’d not been taking a medicine for both allergies and asthma. I know, I KNOW!! Shame on me. But it’s hard to keep up with them all. I’d run out just before Hubby and I left for his last century ride in Elizabethtown and in the chaos of packing (we took puppy with) and making sure we knew where we were going, packing all his cycling paraphernalia, gassing the truck, making a hotel reservation, etc.. I just forgot about it by the time we got back. That and my blood pressure medicine are the only ones I take at night and *blush* I don’t take my bp med consistently (don’t judge…I DO keep an eye on my bp, I just don’t take it every night… more like about 3-4 times a week or so) and so, after realizing the cough was just not getting better, it dawned on me that I wasn’t taking the montelukast (Singulair), I went right out and picked it up. But it’s not like a “rescue” inhaler or whatever, it doesn’t work immediately. Hopefully I’ve learned another lesson about sticking with one of my meds (like the Wellbutrin!) and will stay on top of it better now that I’ve proven how much it helps.
Speaking of Wellbutrin, did I report that I am now getting the brand name (not the generic bupropion) FOR FREE??!!! I had to go back and see the ARNP at the place I’d first gone to for talk therapy so I could continue getting the prescription (hassle since I had to drive almost 50 miles to get there, but…) When I walked into the room the first thing she said was she’d just learned about a program for people with commercial insurance policies that would help pay for the brand name! I had told her how way back years ago when I’d first been put on Wellbutrin (before it became a generic) it worked very well for me, then once the generic came out (and of course, I had to use it because of insurance/cost!) I didn’t feel like it worked as well for me. I had been taking the generic ever since she put me back on it a few months ago at a higher dose, but in generic. Every time I picked up the prescription (which still cost me $30 each time!) it would be a different brand. Nice, when it seems that how effective it was had to do with the “other” ingredients used. We had looked into getting the brand, but it was going to cost me over $200 each month and with another 5-7 prescriptions to buy just for me each month, plus insulin pump supplies?? No way. We just couldn’t do that, so I had to stick with generic.
She gave me a number to call and sent in my info. Later that same day the company called me to verify all the info and in about 3 days, I had a bottle of brand name Wellbutrin XL with no out of pocket cost!! Talk about a blessing!! I haven’t noticed a huge difference, but it will be SO nice not to worry that this different brand generic each month is going to cause a problem. (it has in the past) After realizing how much Wellbutrin helps me, even when I don’t feel like it is/was, I won’t try to go off it again. And now, same goes for the Singulair/montelukast. If it keeps me from having this awful coughing stuff, I’ll make sure to stay on it.
And yeah, I’ll just pray God will spare me the side effects. *bleh*
Okay, then, I guess that’s about it. I will leave you with this though…some notes from a recent sermon:::
“The Bible is like an apple tree. You have to shake it (READ!) to get the fruit to fall!”