Tag: depression and diabetes


frankly Friday: how do you feel about “a cure”


Okay folks, once again, Friday is for us PWD’s (that’s People With Diabetes) but as always, I hope you will all enjoy the post and it will get you thinking about things maybe for the first time!

I just read this article that initially sounded like yet another “we’re closer to a cure for diabetes” thing, but when you got into it, I found that it’s about getting closer to a way to detect future development of T1D and then possibly a way to prevent it from ever developing.

You can read the article here:  Type 1 Diabetes Breakthrough: Scientists Identify Key Molecule Targeted By Immune System

See what I mean?  The title is like “DIABETES BREAKTHROUGH!” and you’re all like “WOW!  YAY!  YIPEE!”  then it just tells you they’ve discovered a fifth molecule that is attacked by the immune system during the development of type 1 diabetes.

depressing letdown  Yeah.  I mean, that’s great news and obviously it’s progress, but for me, it is definitely a little anticlimactic!

How does it make you feel when you hear news about a possible cure for diabetes?  I’m not talking about the okra-water cures that are constants on Facebook.  I mean the news reports from legitimate sources researching a cure.  What goes through your mind?  Whether you are a diabetic or not, I’m interested in how that makes you feel.

For me it’s a mix of emotions.  I’m usually like, “Yay.  Thank God those coming behind me might be spared living with this nasty disease.”  I never feel hopeful of a cure for me.  If you ever look at the clinical testing sites, they want people who were diagnosed t1d within the last year or two, or maybe sometimes you’ll find a study looking for people who have had t1d for as much as ten years, but forget being eligible if you have had it over 20 years.  I know this isn’t the case, but to me it feels like they’re saying, “Oh man, you’re practically dead from it already.  Sorry, we can’t help you.”  Pshhh!  Sorry… did I shock you with my killer negativity?  Yeah, I apologize.  It sneaks out sometimes.  grin

Personally, I don't think us diabetics 'get used to' injections or finger pricks. I think we simply accept that it's necessary to survive.

 

So how do you feel when you see things like that?  Are you “new” enough to have hope that a cure will be found in time to benefit your life?

If I’m totally honest, my conspiracy-theory self thinks there is already a cure, but it is being suppressed because just think of all the money that would be lost if we didn’t have to pay out big bucks to live??  See?  I have this completely pessimistic side and she comes roaring out when it comes to stuff like this.

ANYhow… it IS encouraging that they are learning new things about how diabetes occurs and which genes might be responsible for the misfire that causes our immune systems to attack themselves.  Really, guys, it is.  I just can’t get too excited because progress is so slow and it’s really already too late for “a cure” to save me.

the workings of the t1d brain

Heh.. I was telling some friends last night that I’ve had diabetes for so long, I don’t know any other way to live.  If I got cured right now, I wouldn’t know what to do with myself.  How do you go from spending every waking moment calculating and figuring out food values and dosages for everything that crosses over your teeth and trying to decide how this or that activity will affect your fickle disease to … well, to NOT worrying about those things constantly?  Ha ha… I guess it’d probably be a lot easier than I imagine, but wow… it’s just not something I can really fathom.

diabetes doesn't define me, it just helps explain meI’m gonna close now, but something has been on my mind that I want to share… a couple of weeks ago, I was talking to a friend while waiting for a low to pass so I could drive home.  (fyi: don’t drive when your sugar is low, ‘kay?)  I was explaining something or other about dealing with diabetes when she said, “I thought your pump took care of that.”  I’m pretty sure I contained my dumbfoundment enough that I didn’t bump my chin on the floor, but I was really stunned that she didn’t understand any better than that.

minion: the look you get when explaining diabetes to peopleI guess I just assumed she’d been around me enough to realize, but I guess that’s not the case.  Or maybe I had never really discussed the finer points with her specifically?  I dunno and really, maybe I shouldn’t have been so shocked, but I guess it really floored me that she thought my insulin pump was essentially like a cure.  That as long as I was on the pump, I didn’t have to worry about the disease anymore.

WOW!  People of the world!  AN INSULIN PUMP IS NOOOOT A CURE!!   It is merely another tool in the arsenal that helps us manage life!  I guess I should admit here that I HAVE used the term “external pancreas” to describe the pump to people before.  Now I’m rethinking that!!  I can’t assume that people understand that while a pump is MUCH MORE like that than treating with MDI (multiple daily injections) for most of us, but we STILL have to calculate everything, still have to manage the unexpected, unexplainable lows and highs that can happen.  We still have to deal with going into DKA (diabetic ketoacidosis) if the cannula kinks or we put the port into an area with scar tissue that won’t properly absorb the insulin, or we sweat too much and the adhesive comes loose and the cannula pulls out or… I could go on with a list of possible things that could go wrong, but you get the picture, right?

That’s part of the reason I am writing more about diabetes here than I ever have before.  I believe this wholeheartedly:

I may have diabetes, but diabetes does NOT have me!

I have diabetes.  That’s me, I am a PWD, a Person With Diabetes, but diabetes, no matter how hard it may try, does NOT have me!  It doesn’t define me.  It makes me strong, makes me tough, makes me determined but it will not defeat me.  I may die from the blasted monster, but it will never control me.  I want to live my life to the fullest, be all I can be, yadda yadda… and diabetes may slow me down, it may make me do things a little differently, a little more cautiously, but it won’t keep me from doing what I want.  It may put me in The Pit (depression) for periods of time, it may make me more susceptible to The Pit, but it won’t keep me there.  Never.

ahem   Soooo…. how DO you feel about this??  Please share.  I’d love to hear your thoughts!  Let’s encourage each other, lift each other up, whether you are a PWD or not, if you know me, you have a vested interest in learning about diabetes, you have reason to be concerned about possible cures and other diabetes news.  Chances are, someone you know in your own life (if we aren’t friend IRL (in real life) that has diabetes.  It’s like a plague these days and we don’t understand it well enough to know why!  Get involved.  You don’t have to go join the ADA or JDF, but learn all you can.  Be knowledgeable.  What you learn could one day save my or another PWD’s life, after all!

Please share this post and share your thoughts here!!  THANKS!

mwah!

Blessings,

G~

Acknowledgement:  All images in this post courtesy of Type 1 Diabetes Community FB group


of being a blogger: a plea for help!


Hey y’all.  I’m working so hard, trying to increase traffic here…build an audience, a subscription list, whatever else a successful blogger does.  Most of the time, I feel like I’m just flopping around, splashing water into the floor, making a mess.

blogging sites

I see some steadiness in the amount of traffic, so I suspect some of you are just awesomely loyal readers and probably close friends who stop by often to see what crazy thing I’ve posted.  I am so thankful for you!

I know I’ve said it before, but this blogging thing is a big deal to me.  I started it after months and months of stewing and praying about whether I should even try.  I’ve blogged off and on for about 16 years, so it seemed like the natural thing for me to do…try to monetize the thing I am so passionate about.  I felt (and still feel, btw) that God was really nudging me in this direction and so, even though I didn’t feel completely ready, I took the plunge.  I plopped down what little was left from our tax refund and started this site.

Looking back, a month later now, I see many mistakes.  I think most of them are easily overcome though and not the kind that will break me or the blog.  I still don’t understand stupid AdSense or why my husband can get an account with them like snap that and me, with my two (now three!) google accounts, can’t get any of them approved.  I’m not sure I’m missing much though.  I’m learning that AdSense isn’t the end-all-be-all it has been purported to be, so I have pursued other means of generating income through my blog.

blogging for a living

Some of them I am pleased about, and some I will be glad when I can be done with.  And no, for the record, I haven’t made a single cent so far.  That really concerns me, but I have to remind myself how new it all is.  I can’t do it all at once and I need to be patient.

But BOY, is that hard!!

Today, when I went to look at a “blogging schedule” thingie I got from the web, for today it says to post about relaxing.   BAHAHAHA!!  What is that even?!?  I don’t have time right now to relax, and certainly not about the state of my blog.  Some of these ‘blog helps’ aren’t really geared toward me, ya know?  Many of the blogs in these groups are about how to create a successful website, how to find a niche to build, how to monetize and market whatever you are selling.

I just wanna share life with my readers.  I want to encourage and inspire.  I want my readers to leave feeling better than they did when they pulled up my site.  I want them to find the courage to go on, the determination to stick it out.  The comfort of knowing they are not alone, the peace of knowing someone else out here has been where they are.  I want the person with t1d to find a friend, someone to commiserate with and rejoice in whatever victories we accomplish as PWD’s.  (persons with diabetes)

diabetes and depression

I want the homeschooling mom to know she can do it and I know she can because I did it.  I want her to know that the great mistake she feels she’s made is not the end. That she and her children are far better off just because she tried to teach them at home, whether she continues or not.  And no matter what, as long as she is trying to do her very best for her kids, she is a winner!

homeschooling

I want that couple who is struggling with some sexual incompatibility or physical problem to know they are not alone.  I want them to realize it’s okay to talk about it and that there are people out here who can help, both professionals and people like me who have been there, done that.  I want that woman to know she’s not the first or only one to be facing what she is, and that she need not bury herself in depression and self-hatred or guilt because there is hope.  I want to keep her and her husband from living the hell that we did for 30 years and to find healing and hope!

lasting marriage statisticslasting marriage statistics

More than all this, I want people to know there is hope, no matter what the situation is, there is hope.  There is peace to be had, no matter how big the mess or how damaged their soul, Peace is there for the asking in the person of Jesus Christ.  I want them to know that it is because of Jesus that I am alive today.  That I’m able to share and talk about the issues, struggles and problems in my life.  Ultimately, I believe this is the reason God has been urging me to write.

jesus loves me

I haven’t touched my book in over 6 months, but perhaps soon I’ll dig back into it.  I still feel He is calling me to write it, but I’m at another crossroad about which direction to take with it.  (ANY feedback would be appreciated on this, folks!!)  The book has lived in my head for many years as a sort-of memoir, a story of my life and how I have dealt with diabetes, the depression and all the other physical and emotional side effects of having a chronic disease for so long.  However, as we have come to this place of healing in our marriage, I feel THAT is also a topic that needs to be shared.  It, of course, is much more personal, deeply painful but ultimately hopeful since our long journey through this has ended with our beginning the healing process.  My conundrum is should these be separate or combined?

how to write a book

You probably didn’t know this, but I have a problem with compartmentalizing.  ha ha! Meaning, I can’t do it.  You may have noticed I began this post talking about the blog and now, here I am asking for input and suggestions for a direction of a book!  I need help with my wandering mind, my rambling style of writing.

I know there are some writers out there who read here occasionally.  I also know there are lots of readers who come here too.  I want to hear from you!    What appeals to you in a book?  What topics are you most interested in?  What are you most interested in learning more about?  Help me out!

I look forward to a great discussion and some awesome feedback and suggestions!  Let’s help each other!

Blessings,

G~