Tag: endocrinologist


#13: things that make a t1d scream!


Advisory:  this post is likely to contain ranting and growling.  You have been warned.

So I am on my last bottle of test strips.  Like, halfway through it, matter of fact.  I get my pump and testing supplies from a mail order company.  Most brick-and-mortar pharmacies don’t carry such things, at least I’ve never experienced that in our area.  I have ordered from this one company as long as I’ve had my pump, so over 12 years now.  I’ve had various insurance companies in that time and never had a problem.

Until now.  The supply company will usually call about a week before delivery is scheduled to make sure of what I need them to send.  I got that call about three weeks ago.  All I needed on this shipment was test strips.  Fine, they say.  Two weeks later and no strips.  I call to see what’s up.  I’m on hold off and on for quite awhile.  The lady seems confused and finally tells me someone from shipping will call me.

The next day, I get the call and am informed that the company (CCS Medical, for clarity) is not contracted with my “new” insurance (new since January!) and I’ll have to get supplies elsewhere.  When I asked for some suggestions, I was told, “Call your insurance company.”

So I did.  That lady seemed a little confused too or at least she had problems finding any suppliers for me to contact.  Finally, she gives me a company, Liberty Medical (of all places!) so I hang up with her and call the number she gave me for Liberty.  I’m on hold forEVER listening to the endless “We will be with you shortly” messages until suddenly the message changes to “If you’ll leave your name, number and info, we will call you back.”  Okay, so I did that.  Two days later, NO call back.

I’m pretty ticked by now, as you might imagine.  I go online and send Liberty an email.  The addy is something like libertycares[at]liberty-blah-blah-blah… yeah.  I’m not buying that!  I have STILL not received ANY response whatsoever!!

I am fuming now, so I call the lady at my endo’s office who sets patients up with new pumps, CGMs and checks insurance coverage for such things.  She was supposed to be seeing about getting me a Dexcom CGM since this new insurance is supposed to cover them.  (more about that in a moment)  I dial in her extension directly and get her machine.  I leave her a message with the info, letting her know that I’m going to be completely out of strips soon.  That was around 10 am, so I really expected to get a call back, but nope.

Next day, I wait til after lunch and call the office again.  This time I dial the DNE (Diabetes Nurse Educator) who happens to be my endo’s wife as well.  Her message informs me that she’ll be out of the office til Tuesday, but I leave a message for her anyway in case she’s checking them while she’s gone.  Seriously, this office has always been great about returning calls so I am really puzzled by the lack of communication from them.

I then hang up and call right back to leave basically the same message for my endo’s assistant.  I make sure to tell ALL of them that I am going to be OUT OF STRIPS soon.

For those who don’t get this, test strips are crucial to knowing what’s going on with my sugars, to deciding how much insulin to give or how much to eat/not eat.  They basically tell you what you need to do to keep your diabetes in good control.

angry face

Yes, I can go buy them out of pocket, but I would MUCH rather not have to do that, as you might imagine.  I HAVE blasted insurance for this very reason!  ARGH!!

So, I STILL have no contact, no response from ANYONE and I’m skipping tests to try and make these stupid things last til Monday hoping that SOMEONE SOMEWHERE will flippin’ contact me and get this straightened out.

I am SO mad you can’t even imagine.  WHY do they do things like this?  From stupid CCS (who could have informed me instead of just not sending the shipment) to Anthem who could have been a lot more helpful in making sure I could get my supplies to flippin’ Liberty which is a total fail in the customer service department and who I will NOT do business with if there’s any way around it.  And now my endo’s office!??!  SERIOUSLY, PEOPLE?!?!

screaming man

Sorry for the rant, but this is so unnecessary.  If these industries were TRULY for the patients, this wouldn’t happen.  I guess I’ll be heading to Wally’s to pick up some cheap-o generic strips til I can get someone to do their job out there.  sigh

Happy Mom’s day & have a great weekend!!  🙂

Blessings,

G~


sick as a dog


Hi everyone.  I had such big plans for yesterday.  We had another awesome sermon that filled me with all sorts of good thoughts and scripture to share with you.  If you haven’t checked it out, go watch the latest sermon series from our church or listen to the podcast.

The Creek Church – What Lies Beneath

I have to say, I had a really great weekend.  We had all our kiddos over Sunday afternoon for a cookout.  We haven’t been able to do that in quite awhile.  I put off hitting the house, really getting it cleaned up, til way late.  I’d been cooking, doing some make-ahead recipes and food prep after all.

Honestly though, I started on the house at midnight!  I’m thinking maybe I should always do that because by the time I went to bed at 2:30 am, the house was in better shape than it’s been in awhile.

Thumbs up

Granted, I don’t mean the entire house and we have those “unused” rooms that stay hidden from guests.  I need to just suck it up and start on them, but boy, those are going to take several days and I haven’t quite got the nerve up yet.

Anyhow, we had a great time and a ton of company.  We should’ve known since Tommy said something about taking a long nap after the kids leave.  He doesn’t often slow down and if he stops, he usually falls asleep, so it was odd for him to even think about a nap let alone mention it.  Me?  I am down with a nap anytime and almost any place.  I think I could sleep at just about any time of the day or night.  ALWAYS tired!!

But nope.  Surprisingly, our kids stayed longer than we had expected.  They usually have things they need to run off to do or people to meet.  Maybe they didn’t have to leave because several of their “peeps” came up to the house!  Ha ha!  We had about 5 of the kids from Corey’s church come up to the house.  Then a guy Tommy had sold a transmission to on eBay came from Ohio to pick that up along with his wife.  Someone else showed up in there somewhere but I forget who at the moment.  I think when we counted them all up, there were 11 people at our house Sunday!  That’s pretty unusual for us too.  So anyway, there was no nap taking done on Sunday.

The guys finished up a dreaded part of the Jeep modifications, so they worked a little later than normal and Tommy was wiped by the time he finally came in.

We had that awesome sermon and once again, it tied right in with things we’re discussing and studying in our LIFE group as well.  God’s working on us, I believe.  Moving us closer to Him, maybe preparing us for something.

Monday morning,  like I said, I had big plans and lots of ideas for a blog post.  Seems like I normally have a new one for Monday, but I didn’t feel so great when I woke up.  My first thought was that it was in spite of the sermon the day before (seriously, go watch it!  then you will understand my statement) and I tried to just ignore it.  It wasn’t anything in particular, I just didn’t feel good.  My initial thought?  The devil is trying to thwart my efforts to practice what was taught Sunday!  Hmph!  That may or may not be, but whatever the case, I was sick.  No ifs, ands or buts!

I'm so sick!

Around 11 am, I decided to test my sugar.  I’m almost out of strips and my shipment isn’t due for a few days, so I’m trying to conserve all I can.  Anyhow, it was 432!!  I about passed out from disbelief!  That is of course, way too high.  Normally with a blood sugar at this level, I’ll feel queasy and headachey, really lousy, but not much else.  I texted Tommy to let him know.  I gave a correction bolus with my pump (to “correct” my sugar), grabbed a bottle of water and went to lie down.  I downed the water since high blood sugar can dehydrate you and also the water helps flush your system.

bottles of water

By this time, I had a more serious headache, but I was able to fall asleep.  About an hour later, I got up, drank another bottle of water, tested 372 so I could see it was going down, but slowly.  SO SLOWLY!  I gave another correction bolus and went back to bed because I felt SO tired and was a little dizzy when I got up.  The headache had gone from highly annoying to alarmingly insidious.  I’m serious  you guys.  I have never had a headache that bad, not even a migraine.  Maybe I should clarify and say that I was really aching all over.  My arms hurt, sort of throbbing, my head hurt from my shoulders up and a weird, different kind of pain.  I was a little concerned but didn’t know what to do.  I had grabbed a soft ice pack from the freezer so I slapped that on my head and tried to get comfortable again.

terrible headache

I didn’t sleep as much as I just dozed in and out of sleep.  I was hurting really bad.  I guess it had been around 30 or 40 minutes when I started to feel sick at my stomach.  I eased off the bed and headed to the bathroom.  I also needed to pee really bad!  It was definitely time for the “flushing” part of all that hydration.  I reached into the laundry room right beside our bathroom and grabbed our trusty “puke pan” before I sat down.  I don’t get sick often and I hate throwing up as bad as anyone…but I got SO sick.  I hadn’t had anything all day besides the one cup of coffee around 8 am and then all that water.  And every bit of it came up.  After I dry-heaved awhile, each time seeing stars and worrying that I was going to pass out, I was finally able to get up and clean myself up.  I texted Tommy to see if he could come  home…told him I’d been sick and felt like I was going to pass out.  He said yes, he’d leave right then, bless his heart.  I dragged myself to the bed and realized I felt a bit better than before, so I called him back and told him not to come.  I didn’t feel “passy-outtie” anymore.

feel so dizzy!

DIZZY

Heh.

I drank more water and laid back down and slept pretty hard for about an hour and woke again.  Time to test again: 463!!  I was FURIOUS!  I get mad enough at myself when I’ve done something or forgotten to bolus for a food or miscalculated the amount of carbs in a food, but when I’m giving corrections and ingesting nothing but water and my sugar is still high, I get REALLY angry!!  Stupid diabetes!!  Why can’t you just sit over there and behave?  Why must you torment me this way?  ARGH!  So, I decided maybe my pump site was no longer absorbing or something and gave an injection of insulin this time.   Before I’d got out of bed though, I’d texted Taylor to ask her if she thought it would be okay, with my weird symptoms, to take some Tylenol.  I was about to the point of going to the ER just to get relief from the pain of whatever this was.  She said she thought it should be fine and she felt I probably had a virus of some sort.  I had to agree.  My sugar has been well over 400 before without making me feel this horrific.  Normally, I’d have been queasy, headache-y and felt generally crappy, but this was off the charts.  With such a short-lived high, I shouldn’t have been this sick.

Then again… it seems the D and me, we don’t get along as well as we used to.  I mean, I’ve never been really fond of Diabetes, but in the past few years, the symptoms that I’ve come to rely on have started to change.  I can no longer be sure that my dry mouth means a high blood sugar or know that I’ll have the shakiness, the cold sweats, the numbness around my mouth or any reliable symptoms of a low blood sugar in time to treat it myself.  For decades, I’ve trusted my body to send me those signals to tell me when something’s not just right and now, I feel betrayed because I can no longer depend on getting those signals or that they will even mean what they always have.

Oh well…whatcha gonna do?  There’s not much you can do when something like this happens.  Learn the new symptoms or realize there won’t be any and make yourself be even more diligent.  That’s all I know to do.  Thankfully, this time didn’t land me in the hospital.  I really should get a small bottle of keto strips, though.

ketones diabetes type 1

My endo asked if I had ketones and we didn’t know because we had no strips.  Like the issue with glucagon, I hate having something like that just expire without me ever needing it.  I don’t know if keto strips have gone down any in price, but I’m betting they haven’t.  I’ll just hope I can get a very small package that isn’t too expensive.  Seriously guys, I DESPISE paying for something that I know I won’t likely use up before the expiration date.  Drives me up a wall!

diabetes sick day rulesType 1 Diabetes Sick Day Rules

Bad, bad Geannie.  I know.  Deal with it.  Am I the only one who feels this way?  Am I the only one who doesn’t buy seldom-used diabetic supplies because they are not cheap and always end up expiring?  Tell me if I am.  (but I bet I’m not!)  🙂

What DO you guys do when you’re sick?  I usually end up low when I’m really sick like this, so that’s another reason I’m not sure it was the level of my sugar that made me so sick.  How do you T1Ds respond to illness?  Like the books say or differently?  Is it always the same?  Have you experienced changes in the way your body reacts to things after 10 or more years of T1D??  I would love to hear!!


will I ever learn?


depression symptoms

DISCLAIMER:  Let me say right off the bat that I KNOW I messed up in the story I’m about to relate to you.  I’ve been dealing with this disease for over 40 years, day in-day out.  It gets old.  It gets tiresome.  It gets almost impossible sometimes.  So yep, most of us T1D’s will at least once in our lifetime (usually many more!) fall off the proverbial wagon of good diabetes management.  Therefore, I really don’t need you to scold or lecture me about what a big no-no it was, okay?  Thanks for your understanding.

I wanted to title this post Oops, I Did It Again but all I knowRead More »


getting graded…part 2


Well, I have to say I’m a little surprised.  Pleasantly, and thankful for it, but still surprised.  Even though my A1c was up a little (0.5) it still wasn’t considered horrible.  Dr. Wendell says I just need to tweak a little on my pump settings, Read More »


dirty low down


depression symptoms

Okie dokie, folks. For the one or two of you that read here… if you read my last post about all the allergy and sinus meds I was put on last week, this is a weird and wacky update to that.

The very next day after starting all those meds, I began to have Read More »