I am seriously over this crud! Guys, I’m still hacking and coughing. I am beginning to wonder what in the heck is going on. Seriously! I’ve had, thus far, 2 Decadron shots, 2 rounds of Prednisone, 2 different antibiotics, every anti-allergy med known to man in varying and increasing doses, dual-dose nebulizer treatments throughout, Dulera inhaler, and Flonase spray along with whatever other OTC/vitamin supplements that are supposed to help. There have been changes, sometimes from day to day, in how this “is”…whether the secretions are thick or thin, whether the congestion seems loose or tight, the cough “wet” or dry, etc. but overall, there’s really not a whole heckuva lot of improvement.
It’s driving me nuts. Besides absolutely wearing me out. I’m exhausted. The house is beyond hopeless and I’m stuck in it all day. I have not stepped foot outside the house since I went to the allergist on Thursday. I opened the back door to wave at one of the boys in the yard. That’s as “outside” as I have been.
I’m scheduled for allergy testing on the 13th which is too stinkin’ long to live with this after I’m past a month with it already. I’m considering trying to get in with a pulmonologist. I mean, I’m sure I need the allergy testing anyway, but I’m wondering if there’s not some lung issue. Why are the steroids not more effective? I mean, I’ve taken them often enough over the years, not often, but enough times to know that they normally produce a noticeable improvement within a couple of days. But with this? No such thing. And I’m sitting here wondering if I should finish up this last course of Prednisone I have. I mean, that stuff jacks my sugars up so bad. It’s like insulin has no effect on it almost. I raise my temp basal as high as it will go, 173% and STILL have to override the boluses to give 2-4 more units of insulin to cover my food. Well, not cover it even, just to keep it below 200.
I’m thankful to have the CGM now so I can keep on top of what my sugars are doing while the steroids jack with my sugars. I shudder to think of how bad they have been in the past when I didn’t have a way to keep such a constant watch on them. Ugh! At the same time, though, watching them stay up there while I’m “throwing” insulin at it as hard as I can is just maddening and more than a little scary. I don’t know about any of you guys, but when I know my sugars are up and I can’t get them down (quick enough to suit me, of course) all I can think about is all the damage being done. All the blood vessels being clamped shut and nerves being killed out or whatever goes on in there while there’s an overabundance of sugar floating around. It drives me nuts!
So here I am. Still hacking, still unable to speak with my actual voice. It’s more like I’m doing the voice of some alien monster thing complete with alternate growling and shrieking. I just wanna get well, y’all. Is that too much to ask?
Alright. Like I said, I’m not a whiner, so I guess I’d better shut this down before I become one. heh Maybe that should be, “I TRY not to be a whiner”? Yeah, probably so.
Ah well…I’m not changing it now! ha ha
I hope none of you guys are this sick. I guess I’ll update you if I get in with a lung doc next week. For someone who never worked in an environment that was potentially lung-damaging or who never smoked (other than a couple months in high school), it sure seems odd to me that this would be some lung issue. It honestly seems like it should be entirely allergy related. But then that brings the question of why in the world aren’t the meds helping, then? I have always been weird with medicines…either it takes a ton of it to work for me (pain meds) or I’m allergic to them (antibiotics) or they stop working…?? Why would that happen? It’s not like I’ve ever taken steroids for long periods of time. I have had them several times over the years, but not for extended periods or even frequently, so what gives?
Argh. I give up. It’s scary to think that there’s some (other/more) weird thing going on that is causing my body to no longer respond to these medicines. What do you do when nothing will heal you? Um…die?
Gah. I need to stop thinking about this. And I need some answers…and um, some relief. “and that’s all I need…” ~Navin R. Johnson
So, after THIS yesterday, it was confirmed via the cardio himself that it’s not likely to be my heart that is at fault in all this coughing/hacking/allergy-ish crud.
He agreed it was probably a good idea to go ahead with the stress test and echo my GP had ordered, but that he didn’t think there was any heart issue causing the problems I’m having now. So they went ahead and set all that up for first thing tomorrow morning here in town.
I am still coughing and hacking up junk occasionally. My GP switched me to a different antibiotic, gave me another steroid shot and a script for a long course of oral steroids.
She told me to hold off on the oral steroids until she could see if there was an opening at the allergist for me in Lexington. She said I could get in a lot quicker up there than waiting for an appointment here.
So this morning, I got a text telling me I have an appointment tomorrow afternoon with the allergist in Lexington. Great. I have no clue how long those tests will take or if I’ll feel like driving myself to Lexington afterward.
I talked to the receptionist at the GP’s and she told me no, I wouldn’t have time to make the Lexington appointment after the stress and echo at the cardiologist, so to I told her I’d rather keep the allergist’s appointment. Makes the most sense to me.
I’ve never been to the office in Lexington and don’t know where it is, so I had to call up there and get the address. Well, that was after the kinda goofy gal tried to explain to me how to get there. Egads! I would much rather have an address I can pop into the GPS, thanks!
So I’m pretty sure I can get there okay. Tommy’s so busy with work anymore, besides all the crap stuff he has on his plate at home fixing other people’s stuff, he can’t go with me anywhere anymore.
Seriously, we hardly have any time together these days that we aren’t both wiped completely out. It really sucks and I’m fighting really hard to keep from being really down about it. Ugh!
Anyway, I rescheduled my cardio tests for Tuesday.
I’m not doing much of anything today. The coughing is intermittent, which is better than constant, but my head is so stopped up and I can’t seem to get any relief from that at all.
In other news, while I was at my GP appointment yesterday, Tommy called to tell me he’d been attacked by yellow jackets on the job.
Gah! He came home one day last week with one single sting inside his upper arm that looked nasty! It had puffed up and was spread out as big as his hand! I gave him some Benedryl and made him sit in his recliner. It didn’t’ take long for him to fall asleep, something else he has needed really bad.
Yesterday, though, he had about 15 stings. He was asking me where the Benedryl was and I told him he needed to get his butt to the ER. He flatly refused and asked if I thought my doc would give him a shot.
Really? Sheesh… I told him I’d ask, but I doubted it since he wasn’t a patient there. Of course, I was right. I told him to take the Benedryl with him, drive straight to his doctor’s office and get himself taken care of.
All this conversation was going on while I was getting my own steroids administered to the butt. Sheesh…
In a few minutes, he called back saying they had told him to get to the ER. (why doesn’t he ever learn to listen to me??) but he was still fussing and making noise as if he wasn’t going to go. I told him, Look jack, I’m sick, I’m at the doctor’s office myself, I already had my shot in the butt, the least you can do is go get yours before something bad happens and you stress me out EVEN MORE than I already am, okay?
That seemed to shut him up with the excuses, but I still wasn’t sure he was going to do what I told him.
In the meantime, however, I had my own doc in the room and needed to talk to her. She switched my antibiotics to the first one she started to give me last week. It’s basically the same thing I had been taking, only a tad stronger. Remember, I have major issues with several antibiotics, so I have to be really careful what I take. But it was pretty clear the Keflex wasn’t doing anything.
The main thing with the Omnicef last time was it didn’t seem to work either, however, that was with an ear infection, so we decided to try it again anyway.
I finally got done in the GP’s and headed up the street to the cardiologist, where I was almost late already. I texted Tommy to make sure he had gone on to the hospital. He said he was in a room already since they had taken him back ASAP.
So I went in and registered. It didn’t take too long for them to call me back. The nurse did an EKG first thing and then left me to wait for the doctor. He wasn’t long either, and asked me a bunch of questions. Mostly he seemed confused about why I was there. I told him I didn’t believe my heart was to blame for the coughing either, but that my GP wanted to be sure there wasn’t something going on since I have type 1 and he agreed it would be a good idea to do the tests.
After I got out of there, I called Tommy again. He was waiting for them to give him a shot. He wanted me to go eat lunch with him. I needed lunch since it was about 1 o’clock by now and my sugar was in the 60’s already.
I sat in the parking lot and ate a few Lifesavers before heading across town to Cheddar’s where Tommy wanted to meet.
By the time I got over there, he still hadn’t got his shot yet, and I didn’t want to sit in the restaurant feeling like crap, so I leaned my seat back and rested while he was getting that stuff done.
We didn’t piddle around eating and then headed home. Tommy stopped by the pharmacy to pick up our collective meds. Mom came by just after Tommy got here. She was checking to see what had happened at the doctors.
Tommy and I had planned to make a run to the grocery store since we are out of a ton of stuff, but we were both exhausted, so I proposed a power nap and then go to get groceries. It didn’t take twice to convince him, so I was almost asleep before my head hit the pillow. He apparently didn’t sleep much. Maybe his shot kept him awake. He’s more sensitive to stuff like that than I am. There’s not a whole lot that can keep me from sleeping.
We got our groceries and picked up a pizza on the way back home. Definitely not the best option since I had a steroid shot running through me again, jacking my sugars up. But it was what Tommy wanted and I couldn’t think of anything else. I emptied the rest of my reservoir on supper, though. sigh
So today, I get a text telling me I have an afternoon appointment with the allergist in Lexington. I called to see if it was going to be possible for me to make it up there after the echo and stress test that morning. They said no, so i asked them to reschedule the tests because I am PRAYING that seeing the allergist will be more helpful than anything else.
I’m still hacking but not constantly. The congestion is a bit worse, but more tight than loose. I’m so beyond ready to be over this. I feel like I have fallen off the world, ya know? It feels like I am stuck here, trying to …well, most of the time it feels like I’m just trying not to die, and the rest of the world just goes on without me. Ugh! I just don’t know why none of these meds are helping. If this is really all just allergies? I mean, the ONLY “new” meds I’ve been given since getting so sick are the steroids and antibiotics. All the allergy medicines I was ALREADY taking on a daily basis.
I just pray that we can get some answers soon. I really need to stop being so sick. I mean, I am REALLY done with this stuff!
Sorry. That’s me barking. For real, guys. I am hacking and barking like a seal. Like rib-crunching, body-jarring coughing. But that’s usually how I roll.
Coughing and me are old acquaintances. I think Cough would like to be more than that. I mean, he obviously sees us as friends as often as he comes by and as long as he stays once he gets here.
I’ve told him, “Cough,” I’ve said, “I really don’t think we’re all that compatible. I mean, true, I can be a royal party-pooper, but you? C’mon! You take the cake, pal.”
But he seems oblivious to my subtle rebuff. So I get a little more aggressive with my dismissal…
“And actually I’m not into that deal where you hurt the one you love, y’know. Although…I could definitely knock you into next week, though there’s just no love here on my part. Frankly, this is not even one of those ‘we can just be friends’ situations, either. To be completely honest, you make me angry. Y’know, like Dave Banner just before The Hulk angry.”
“…and dude, seriously, you won’t like me when I’m angry.”
That’s how I’d LIKE it to go. But actually it’s more Cough has already morphed into The Hulk and I’m whatever this is he’s smackin’ to smithereens:
So…yeah, I’ve been way scarce here and I am hating it! Hopefully, ol’ Cough will find some fresh prey and head on outta here and leave me a-LONE!
Y’all be good now…
Seriously. That seems to be the norm for me a lot of the time. I’m usually a fairly positive person, but when I start to feel good for a change and then get SICK. Not just sick, mind you, but S-to-the-ICK, it can bring me down a little bit. (see previous post here)
On top of that this morning, I’m more than a little perturbed that I can’t get an appointment with my regular doctor. They have more problems with their flippin’ computer system than a dog has fleas! This morning, I was informed that the system was down and they couldn’t make appointments. As in, “We don’t even know how to use a time chart and schedule people the old-fashioned way. shrugs Sorry.”
ARGH! The lady asked me to call back. I fumed and fussed and reported the sitch to my husband, who told me to call his doc (who is my FORMER doc, so I declined) and when I finally called back, I had to do it four times. The first three times I got that annoying busy signal. The fourth, I got an “all circuits are busy” message.
Are you kidding me?
So I texted Tommy back and told him that if he wanted to get me an appointment, go ahead. I just didn’t think I could call the old office up and ask to be worked in, ya know?
ANYhow, so I have an appointment with some new lady doc who will be taking over the office when the current guy leaves. Yeah, he’s sick of dealing with our state’s ridiculous healthcare monopoly. I dunno what you call it, but all of the doctor’s offices around here (almost) are hooked into this company, so they all have basically the same name and they all share records and they can apparently fire people you have hired to work in your office and dictate how to treat your patients. Yeah. I’m surprised we have as many doctors as we do around here. I can’t imagine that sort of thing is at all pleasant to deal with.
But back to me and how sick I am…
I’m not sure what’s going on. This came on pretty suddenly and started as just
a sinus-y thing…lots more drainage than usual. Thick, choking stuff that hung in my throat, literally choking me to the point of gagging and all-but throwing up. (sorry for the TMI… I’m all about the facts, y’all) Then that slight cough that quickly escalated into this barking, hacking, chest-rattling cough. I feel like I might possibly have an ear infection too, so I am feeling really and royally craptacular right now.
I always think, when someone asks or comments about how “strong” or whatever I am living with diabetes or whatever other health thing I’m dealing with at the time. I don’t really see myself that way. I mean, I just play the hand I’m dealt, to dabble with a card metaphor. God equips us to deal with or grow from our life situations, ya know? We may not feel strong enough to deal with whatever is happening at the time, but He sustains those of us who call Him Father. None of that has to do with my abilities. It’s just that I trust Him, sometimes a little belatedly, but He gets me through stuff. It’s nothing that I can do on my own.
My favorite scripture and what I claim as my life verse/s is 2 Corinthians 12:9-10:
That one has kept me sane during several long stays in the hospital or long dark nights in misery and pain.
So yeah, I’m really sick right now and feeling whiny because it’s come right on the heels of starting to feel better than I have in months, maybe even years! (see previous post here) But I’m trying to be patient and learn whatever lesson God has for me in this.
What’s your life scripture? What one verse (or verses) do you go back to over and over again when life gets rough? What does the Bible say that keeps you centered when your world seems to be crumbling?
I tell ya, sometimes I wanna just scream! After my big post about how much better I’m feeling with my neck & shoulder pain (read here) I started with a little tickle-y cough a couple days ago. By last night, it had turned into a constant throat-clearing in an attempt to move the glue off my tonsils. Yeah, nice, huh? There’s a big wad of thick gunk that just sits right at the back of my throat but it won’t move up or down. Such a pain!
Maybe you saw my Instagram photo of me and Tommy heading out last night for a last-minute, spontaneous date night. It would have been awesome except for that daggone mucus train trying to drive through my head. By the time I finished my chicken tender salad with 1000 Island dressing, my mouth was in shreds and throbbing (that’s my super-tender, allergy-prone mouth for ya…between the rough texture of that super-crispy chicken, something a little spicy in its batter and the tartness of the dressing, I couldn’t quite finish for the pain in my mouth. ARGH!) and the bit of heat from the chicken had started my sinuses running. I ended up walking out of there trying to blow my nose while holding an ice cube in my mouth to ease that pain.
I know. I sound like a really high-maintenance chick, don’t I? I promise, I’m not really, but when this kind of thing starts happening, I’m a mess and at a complete loss to control it. We did stay until the end of the meal. Tommy had his plate clean as a whistle while I was still struggling to eat what I could before my mouth was just too painful to eat anymore.
This morning, the roof of my mouth has the remnants of all the tiny scratches made by the crunchy chicken and I’ve been scraping the resulting buildup of skin off as much as I can. (sorry, TMI? well, this is a common occurrence for me)
I didn’t sleep worth a flip last night for the cough, which hasn’t gotten completely out of control the way my coughs usually do, thank God, but the throat gunk was just miserable. I probably should have tried gargling but knew it would sting the heck out of my cut-up mouth, so I didn’t. I took all my night-time allergy meds (generic Rx Mucinex DM along with 12-Hour Sudafed twice a day) plus a couple Benedryl thinking that might help me sleep and soothe the whole mess, but nope.
sigh Yeah, I’m so over this stuff! And while I am feeling a tad better after using the Netti Pot this morning and noticing that my ears are popping and cracking like mad, I can still feel the “whatever it is” trying to get me. I’m getting back on my Emergen-C 1,000 mg Vitamin C Drink Mix to boost my immune system a bit.
Right…just when I was starting to feel so much better! Gah!
When this kinda thing happens, it always makes me wonder what God’s up to and why the devil is trying so hard to whoop me or keep me from being up for it. Oh, don’t you worry. He won’t hold me down. I know God can bring about whatever He plans in spite of the wicked’s best efforts, so I’m hanging in there.
I just wondered, though, does that kind of thing happen to you? Do you wonder the same way I do? What’s God been prepping you for and why is there such an effort to keep you from doing or realizing it? Or do you just get super-pessimistic and bitter? I hope it’s the former because I firmly believe there is a purpose in everything. God can use the worst of situations to bring about something glorious if we will let Him.
How do you deal with these kinds of setbacks in your life?
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Sorry. That old song “Alone Again Naturally” came to mind when I started writing. Maybe that’s not the name of it, but the chorus says that. And that’s how I feel.
You know those memory apps that show what you posted or took photos of however many years ago? I have been seeing them for a good week talking about being really sick. Like, year after year, I am sick this time of year.
Why does it always seem like I’m surprised by it? I just don’t get that. Apparently I’m a lot more forgetful than I realize. Heh.
So yep, I’m sick again. I’ve been doing the hacking sporadic coughing fits thing for over a month. I got this new doctor as I mentioned and she’s really intent on getting me into better health. Bless her heart, I don’t think she knows what’s she’s getting herself into, but more power to her, I say! At least she is willing to try. She’s got me set up to see an allergist in a few days and that meant going off my allergy meds.
I don’t think that’s where my problem started at all. It sure didn’t help things though. And that’s kinda weird too because obviously the meds weren’t doing all they should have, so why am I so much worse now?
Who knows? I seldom stick to the medical books.
I was supposed to go to the dentist this morning to get one of the three trouble-makers fixed, but I was coughing so bad there was no way. I didn’t sleep much and I have a pounding headache that’s constant now instead of just when I cough. Feels like my skull’s gonna pop open.
I really can’t imagine that I’ll hear anything much different from this doctor. I mean, I’ve been to an allergist before a few years ago. They confirmed I have asthma and was allergic to some random things that I don’t really have that much contact with and put me on allergy shots.
I finished out those and saw no change in symptoms. I am just really hoping this guy doesn’t suggest that again. For one, I detest driving to get those stupid shots, then sitting in the sick room (waiting room) until the time’s up.
For two, I am REALLY not interested in doing it when they don’t “fix” me, ya know?
My concern today is that I’m setting up a chest infection. If that’s the case, I don’t think I can wait for another three days. I’ve called my new doc, first thing this morning actually. I haven’t heard anything yet. Strike one, I guess.
*sigh* I had high hopes for this one. I’m not counting her out yet, but she really needs to get in touch with me.
UPDATE: I finally heard from the doctor’s office. As I feared, there’s really nothing to be done since nothing is yellow or green, thus probably no infection. I was advised to just hang in with the saline and use steam and then call if anything DOES turn color. I’m just trying to be thankful that there IS no infection, but when I get to that allergist dude better break out the steroids once those tests are over. Chick is dyin’ here!