Tag: type one diabetes
Do you ever wonder what God’s love looks like? Well, I’m going to show you just one of many shapes His love can take. Observe:
Yes. That stack of medical supplies is just one example of the way God’s love looks to me.
Let me explain.
If you read here at all, you probably picked up on the fact that I often worry about money. I honestly don’t worry about much else. Maybe if one of my kids is sick or hurting emotionally, I’ll be concerned and prayerful about that, but things like medical crises and being sick or injured myself doesn’t worry me. I think that God has shown His hand SO many times in that way that I no longer spend very much time worrying about my health or things like that. But money (or rather, the lack of it!) has always had the power to bring me to my knees.
Worrying about how we’ll pay the bills or afford to fix something can mess me up big time. I will fret so much about it that I almost just freeze. Nothing more so than when it comes to the dire necessities.
God has grown my faith and matured me a lot in the past several years when it comes to trusting Him. I don’t say that to brag, but to point out His grace in being patient with me and giving me second, tenth, eighty-fourth chances. It has always bothered me that I worried so much about money. I’m always trying to figure out how to make more of it, how to generate more income or in times of serious need, I start thinking of things to sell and we just don’t even have a lot of that when it comes to making a quick hundred or so. Yes, for us, an extra $20 can sometimes be very hard to come up with, just so you understand my frame of reference.
After some wonderful sermons that have been speaking to me about growing my faith, I determined that I would stop fretting about money and paying bills. I would begin to wait, lean on and trust in God to meet these needs. And before I knew it, a perfect opportunity presented itself.
I was almost completely out of supplies for my insulin pump. I had called the supply company already over a week ago trying to sort through a balance they said I still owed. I explained to them that I have a second insurance policy that should have paid the balance. They said I had one amount from the first of the year already in collections and another balance. After being given the run-around and being told various things by various people, I finally had a sales rep tell me they don’t “participate” with my secondary insurance company.
Nice. After having TWO different people who were supposedly from the company’s insurance department assure me “we will get that filed with your other policy right away”, now a sales rep tells me they don’t even take the other insurance?? ARGH!
I have no patience when it comes to this kind of stuff. It sets me on edge and makes me a nervous wreck. There’s just something about being told you have an outstanding balance of almost $1500 that makes me queasy. When it’s all we can do to get the utilities and mortgage paid and have a little left over for groceries while juggling a stack of hospital, doctor and lab bills from month to month? It just overwhelms me and sets me on a track for a real fear-fest. Echos of “how are we going to afford…” and “where will we get that much…” begin to cripple me.
So here I sat, down to ONE line set and three reservoirs having visions of having to go back to multiple daily injections and thinking about how awful my levels would become without a base rate of insulin from the pump… I just stopped and thought, “Okay, God. You’re going to have to take care of this. I can’t see ANY way to come up with this money, so I’m going to just trust You.” It’s much easier to “trust” God when you have at least an idea of how it might be possible to make something happen. That’s why He does things like lead several million people to the edge of a sea with a murderous army pursuing them…so He can show Himself and it be known that without a doubt, there was NO WAY they could have escaped without God’s provision. (Read the story of Moses)
He erases any chance that a thing could have “just happened” or that man could have had anything whatsoever to do with it.
That’s where He had us. We were already behind on one of our big payments and thinking we would barely scrape by if we paid the big ones this week, then the lesser bills next week. Now this?
I was thinking about how I could maybe use another reservoir but reuse the same line set when this reservoir was empty. That’s risky and can cause an infection at worst or irritation at best. I was trying to think of EVERY POSSIBLE SOLUTION all the while saying, “I’m going to trust God with this.” Even though, in reality, I wasn’t really trusting Him completely. I have to say, though, I was doing better than I would have in the past. At least I hadn’t allowed myself to fall into a deep depression and cease to function. I hadn’t curled up anywhere to cry. I was actually doing better than usual, but still… I hadn’t let go of trying to solve the problem myself while I was “trusting God”.
Shame on me.
The very next day after getting the news that we would have to pay $600 of the full balance before they would let me order again, I got a text from a lady who has been doing my physical therapy. She works on Tommy’s back too, so we have both gotten to know her. She’s really sweet, but struggles with self-worth and depression too. We’d been trying to get her to come to church with us, but it hadn’t worked out so that she could. I ended up sending her this sermon after telling her it would do her a lot of good. I told her to MAKE the time to watch it when she could concentrate and pay attention. So she had called me when she got to listen to it while driving a couple hours to another town for a job. She was almost in tears and said I was right, the message was exactly what she needed to hear.
So then, the day after getting the news about having to pay the huge amount before I could order supplies, she texted to see if I was coming in for an appointment that week. I told her no, I wouldn’t be there til the next week. I forgot to mention, she is now moving to Georgia (moving this weekend, actually!!) so she said she would be gone by then but she had something to give me and could I stop by the office. I said I could come by after lunch.
When I got there, she hugged me as usual and I chit-chatted with the receptionist while my friend went to get this mysterious “thing” she had to give me. When she came back, she handed me a plain old envelope and told me not to open it until I was gone. We hugged again and said our goodbyes. She promised to keep me updated on how things were going, I told her once again she was going to do great and everything would be fine and then I left.
When I got to my car, I couldn’t stand the suspense, so I opened the envelope, which was sort of “puffy” and inside I found 10 bills totaling $70 and a note explaining.
I was floored when I saw that it was cash. I mean, what on earth? I wondered why in the world is she giving me money since I knew she was a bit worried about having enough to make the move and get settled before starting her new, better-paying job in Georgia.
The note explained that she felt led to “tithe” wherever she was spiritually fed. I’m still not sure what I think about that, but anyway, she said I had helped her so much and the content of the message I’d sent her had been exactly what she needed and she knew that was only through God.
I sat there, stunned, thinking this is God showing me He’s handling things. I mean, it’s not every day people just give me such a sum of cash, ya know? So I KNEW it was God but still, in the back of my mind I was thinking, “This is great, God, but it’s not nearly enough… but I am going to trust You still…”
When I told Tommy about it that night, he was flabbergasted too. He said it was just God giving us reassurance that He was taking care of it. He said that someone had offered to buy one of his hobby tools and that might get us another $400 so we were encouraged and went on about our lives hanging onto the peace that God would take care of it.
Yesterday when Tommy came home from work, I knew something was up. He came in telling me he HAD to tell me something. It’s always serious when he comes directly to me instead of checking on something he’s been working on in the shop.
He began telling me about going into a place where he had to buy some things for work and also some that were needed for his dad’s old pickup they’re rebuilding. I thought to myself, “Great. This is going to take forever and there’s a possibility it doesn’t even concern me at all, he’s just excited about something!” I will admit, I’m not very patient when it comes to listening to Tommy tell me some long, overly-detailed story about what they’re doing to that truck. Ha. I don’t know half of what he’s talking about and I’m not super-interested in how it’s coming along until he can tell me it’s done! He gets so excited about stuff sometimes he HAS to tell SOMEone ALL about it, and I am usually that someone. It doesn’t matter to him whether I understand him, whether I care or even if I listen for the most part… he just wants to tell it and ‘get it out’ of his system somehow. It drives me crazy because I seldom EVER do that to him. He would croak if I told him every time I got excited about finding a new way to get stains out of his clothes or if I went into great detail about how difficult it was to do my own nails or something that he has absolutely no interest in. He doesn’t seem to mind that I don’t care how many times they tried the whatsit in the thingamajig to get the whatchamacallit up to 2000 RPM’s or whatever. sigh
ANYway… this wasn’t that kind of tale, thankfully. He started telling me about talking to a lady who worked there who also has type 1 diabetes and was having a bad day with high blood sugars and when her sugar finally came down, she was feeling really awful. He then said they got to talking about supplies and insurance and it came up that we were having trouble getting my supplies. She looked at him and said, “Oh, well the way my insurance is now, I actually have some extras. I can give her at least a box of each.”
Tommy said he almost started bawling the same way I was in tears at that very moment. I was just FLOORED. So THIS is what God was planning?? And all that time I was trying to figure out where we’d find the money to just pay what absolutely had to be paid soon enough for me to not run out and all along He had it more than well in hand.
We made plans to meet her at a local store at noon today and when we got there, she handed a bag through the car window with not one, but THREE boxes each of line sets and reservoirs! I was just stunned! God had provided above and beyond what we even asked for!We thanked her profusely and then started talking.
Tommy knew she hadn’t been in church in awhile, so we invited her to go with us. She seems to want to but is hesitant. Most people are, I guess. Even when they know they need to get back in church and back on track with the Lord, we always seem to draw back as if we don’t know how much better life will be.
We told her we’d call her in the morning, so I’m praying something changes her hesitancy into eagerness or at least willingness to go with us. She’s a single mom with a young daughter so I’m really hoping she will come. Perhaps, just maybe this is the reason God lined all these things up?!
I don’t know, but once again, He has provided. I’m so thankful for His patience and His grace. Now we have time to gather the money needed to at least let me order supplies again. What the lady gave me is almost three months’ worth of supplies. CAN YOU BELIEVE THAT? We offered to give her some money (remember the $70 my friend gave me?) but she refused to take it. I was really hating to have to part with that cash if I’m being honest, but I would have given it to her if she’d taken it. I feel so ashamed that I wasn’t more willing to give it away since it was given to me. See? I am still struggling with feeling a sense of want.
All the more reason I am SOOOO thankful God is patient with me.
Has anything like this ever happened to you? Do you worry about money too? If so, how do you deal with it?
So yeah, in this post I mentioned that the reason it was delayed is because I ended up in the hospital that evening. I promised to tell you about that, so here goes…
I’ve been really REALLY sick since the end of August. If you’ve visited at all in that time frame, you probably know this already. I was just miserably sick with some sort of bronchial-slash-allergy illness from Hades! I was on and off antibiotics and steroids and all sorts of allergy medication, nebulizer meds, inhalers and nasal sprays. I was using an oil diffuser, vitamins and herbals, teas, Vicks on my feet… you name it and I tried it. For the longest time, I just could not seem to get better at all, or I’d get better for a couple of days and then go back or get worse. Finally, FINALLY, I started to feel like I was over the hump and improving a little. I had started immunotherapy and either that was helping or The Sick just got tired of me at last and went to torment someone else. I honestly don’t know. I just knew I was thankful to feel almost human again!
That was a couple of days before Thanksgiving. I felt good enough to help plan the meal. I even baked a turkey sans stuffing specially for Corey because poor Mom couldn’t seem to understand that even if she only put stuffing inside the turkey, it could still cause his celiac to flare and had loaded hers full of regular, gluten-laden stuffing. I also made him some gluten free dumplings, gravy and dessert before going up to Mom’s to make my usual batch of dumplings for the rest of us. It was a great day, the best Thanksgiving we’ve had in a while. My cousin Gabe was able to be with us and about six other random friends of ours or our kids were there with us unexpectedly. I was thankful that my parents didn’t flip out having so many people over, but they seemed to enjoy it once the initial shock wore off. We were there until almost 11 pm playing games and having a really good time.
That was on Friday. Yes, I know Thanksgiving is on Thursday but for whatever reason, Mom had decided we would do our Thanksgiving dinner on Friday, and so we did. So I got through the weekend fine and continued to feel better. So much better I was beginning to tackle the house, which has been in a horrific state of neglect for MONTHS now.
Then on Monday, I once again was feeling really good. It’s not often I have days like that, and especially after being sick for so long, so I was relishing the fact that I didn’t need a nap before noon and that I was actually able to finish several tasks without getting wiped out or discouraged. It was starting to seem possible to get the house in shape enough to get ready for Christmas!
I had gone to get my allergy shots around 9:30 so being dressed and out and actually getting an errand completed by that time of day was a major accomplishment! I switched out some laundry, folded and put a load of it away, unloaded and loaded the dishwasher, washed the big dishes and put them away and scrubbed the sinks. I felt like I had conquered the world! The only downer at that point was that my sugar had been hovering around 200 for much of the day. I ate leftover dumplings with Tommy for lunch around 11:30 and had struggled to get the number down ever since. By 2:00 it was still up and of course, my CGM was “screaming” at me every five minutes. It just kept alerting me that my sugar was high.
Really?!?! Yeah, I know already! I really love my CGM and it’s a great tool to have, but I wish there was a way to make it not continue to make that noise after you already know it’s doing whatever Dex is alerting you about while you’re trying to correct the problem! Gah! I had started a post earlier and now it was finally finished. I just needed some photos to compliment the theme, so I was busy searching, uploading, transferring and editing so I could publish when I suddenly got extremely tired.
It wasn’t a “low” tired, but then again they never seem like “low” tireds. sigh I just figured that all my energy had been spent and it was time for me to recharge. By this time it was about 3:30 – 3:45. While I’ve been sick, I got in the habit of just laying down whenever I felt tired and napping instead of fighting it. I figured if I slept for 45 minutes to an hour, I’d feel lots better and could get some more done around the house.
That’s the last thing I remember before the ambulance.
I can remember hearing unfamiliar voices. I can remember the sort-of fading-in of voices asking me questions … it was like tuning in a radio station. I couldn’t understand the words for a time until I got them “tuned in”. Then I would hear someone talking about me. Saying what my blood pressure was, talking about turning “her” or that “she’s starting to come around”. I think that last sentence is what caused me to realize what was going on and open my eyes.
Somehow, I knew I was lying on the floor of my bedroom with my head at the foot of the bed next to the closet doors. I remember wondering how so many people were able to fit in such a small space then I began to wonder what in the world had happened.
About that time, I heard Corey’s voice and spoke his name. I’ve gotten in the habit, ever since I started having those sudden severe lows, of stating what I can see or hear in an effort to let people know that my brain is operating, at least a little. Then I saw Taylor’s face and spoke her name. Both of them said things like “it’s going to be okay”, “you’re okay” and “it’s alright now”. I started trying to ask what happened but must not have been doing a good job when a man to my right leaned over and told me his name was Daniel. That’s when I knew I was in real trouble, or at least I had been. I could see his EMT uniform and the creepy blue gloves on his hands. Beyond that, I couldn’t tell anything else was going on with my body other than I was freezing. I began saying, “Cold. Cold. COLD.” That’s when they counted and I could feel them lift me with a blanket and plop me onto a gurney.
I could see I was being wheeled through my kitchen and out the door onto the porch. It hit me then. The realization that I’d been the cause of yet another medical bill. I began saying, “I’m sorry.” And I was, both for racking up another bill to pay and for worrying my kids like this. Corey told me there was no reason to be sorry. I continued telling them I was cold because folks, a post-hypo freeze is nothing to be toyed with. One nurse later told me a severe hypoglycemic episode can put you near hypothermia! I believe it!
They loaded me into the ambulance and both Daniel and Corey climbed in on either side of me. I began asking Corey what had happened. He started off by saying I had probably busted my nose, but it was okay. That was puzzling because my nose didn’t hurt. I touched it and it felt fine. I didn’t know what he was talking about. Then I felt the stiff remains of dried blood on my face, then the stickiness of something else… Corey gently wiped at my face with a tissue. “It’s okay. You’ve got some blood on your face. We’ll get it off in a minute.” I said, “Sticky.” He said, chuckling, “Yeah, I got a little syrup on your face. We’ll wash it off soon.” Then I asked him again what happened. He said, “You got really, really low, Mom. But you’re okay now.”
I listened as he and Daniel talked about me and then about the job. Daniel remembered hearing about the EMT Cadet program that Corey had been part of before it shut down. He said, “I could tell you’d had some sort of training by the way you handled things in there. She’s up to one-nineteen now. That’s much better.”
When the ambulance stopped, I remember noticing all the red brick and then seeing Casey, Melissa and Taylor standing outside the open doors as Corey and Daniel began to move me out into the cold air. Then I saw Tommy, who I hadn’t even had time to wonder about. They got me into a little room in the ER and another guy came in and tested my sugar. “Sixty-nine,” he said. Then he asked Daniel what my sugar had been last time and decided to give me a second dose of D50. I’m not sure why this was done since by then I was able to eat and drink. After researching about D50, I learned that it’s not good on the veins and Lord knows, I have bad enough veins to begin with!
I finally began to get warm after about 2 hours. And my sugar began to rise too. I had found out by now that Tommy had had Corey remove my pump as soon as he found me passed out. I connected back to it and bolused for the 170+ sugar. From that moment on, I would have to fight for every single unit of insulin I received during my 22-hour stay.
The hospitalist had me disconnect from my pump. Don’t get me started on how little most hospital staff know about diabetes. In this instance, since at that point we weren’t sure what had happened and thought maybe it had been a pump error that caused the severe low, I was okay with removing my pump. However, I was NOT okay with the hospital’s method of dosing. Nor with their schedule for testing my blood sugar. According to them, if it wasn’t done on their glucometer, it wouldn’t be scanned into the system. Whatever. I still don’t want to wait til you think it needs testing. So when I check and it’s 198 and I tell you I need some insulin, don’t tell me it’s not time, you’ll bring it with my supper or you will be right back with it (then don’t come back for three more hours). It was INFURIATING trying to manage my sugars in there.
Also, don’t confuse your medical degree with my decades of first-hand, 24/7/365 experience of dealing with my own disease. Thank you.
I’d forgotten how horrible diabetes-in-the-hospital can be. When I complained to the hospitalist about the fact that my sugar was approaching 400 and I had asked several times for insulin, she told me in the ER (because apparently, if you work in the ER, you only know abut ER stuff??) they usually see diabetes patients with sugars well above 600 and have no clue they are running that high. I informed her that —I— was not one of those patients and when my sugar got above 200, I felt sick and I wanted to keep it under that. She agreed and said she’d write it in the chart.
I don’t know what “it” was, but the treatment I got regarding my insulin in no way resembled control. I won’t keep going on about this. Maybe it’s fodder for another post instead, but the reality of ill-educated medical staff when it comes to diabetes is just epidemic!
Okay, so when Tommy and I started going back through the history on my pump, we saw that I had somehow (“somehow”) given about 20 units more insulin after my meal of dumplings. Obviously, I had needed more than I estimated, but not THAT much more. When we looked at the times of the boluses, we could see that I’d given several of them either in my sleep or at such a low level that I didn’t realize what I was doing. All I can figure is that I went to sleep frustrated over trying to give enough insulin to get my blood sugar down and had heard my CGM go off so many times that day that when it continued alerting, now for lows instead of highs, I would automatically bolus thinking it was still saying I was too high.
That and also what the pump trainer said… after bumping up my basal rates in tiny increments over the last several months, having the lung infection then being on all those meds, and then finally getting well, my body went back to its former insulin needs quicker than I expected or could adjust for them. So it was another perfect storm as far as situations that combined to cause this horrible low.
I’m just immensely thankful to be alive. I’m working to train myself out of the habit of just hitting that bolus button before testing and actually not to use it at all, but instead use a temporary basal rate to correct highs and an extended delivery (a square or dual-wave) bolus when I eat so all the insulin isn’t hitting my system at once. Tommy, bless his heart, has been off all week watching over me and helping me test these adjustments to see exactly what works best. He gets extremely stressed and fretful if my sugar gets to 60, which is something I’m not used to. He’s usually the most calm, collected person I know, but after seeing me bleeding, lying in the floor seizing and thinking I was dying right in front of him, he now worries any time my sugar even hints at going low.
I am truly blessed with the best family ever. If not for my hubby, who had called to check on me when I was around 50, but I don’t recall talking to him. When he thought I was treating my low myself, he hung up with me, but then got busy with his work and didn’t call again until 30 minutes later when his app alerted him. When he couldn’t get me on the phone, he called Corey to see if he could go check on me. As soon as Corey found me, he called his dad and just said, “You need to come home, Dad, it’s bad.” Tommy called 911 immediately and tore out of the work site heading home.
I’m not sure when Taylor and Casey arrived, but I’m pretty sure Corey called Casey and he called Taylor so she could come straight to the house when she got home from work.
Hopefully, my sharing these kinds of things will help you understand how hard it can be to manage and regulate diabetes. That it’s not a cut-and-dried medical issue, not one-size-fits-all treatment and not even this-works-every-time because ultimately, Diabetes does it’s own thing sometimes and it doesn’t have to make sense.
It’s a cruel, exhausting disease so when you meet a person with diabetes, be kind. Be sympathetic. Be nice. Shoot, just be that way all the time, but please extend a hand to the PWDs in your life. As the meme goes, be kind to PWDs, we deal with enough pricks already.
Say what? Yes, I just read about this new stuff that could be coming out soon. Instead of depending on someone who is with you knowing how to mix and inject a traditional glucagon pack for you, they could just spray it up your nose!
That’s a pretty awesome idea! This company who’s been doing research, Locemia Solutions, has basically been working in secret on this stuff but is now sharing that they are ready to apply for all the FDA crapola to be put on the market!
For those of you who don’t know, THIS is the current and ONLY method for delivering glucagon:
About the worst they could do giving a shot of spray in your nose is give you a nosebleed, right? And how much less freaked-out might they be having to do that instead of mixing, drawing and giving an injection?! Let us know, any non-T1Ds out there…which would YOU rather do for your friend or loved one?
This was especially close to home for me this morning because last night, I did it again. insert furious face here I have had my pump for about 12 years now. I have NEVER taken a break from it, never opted to go back to MDIs (multiple daily injections) for awhile. Getting that thing really saved my life, and as much as I hate it sometimes…like when the tubing gets hung on a doorknob as I’m working in the house or when I’m struggling to find a comfortable place to wear the thing with some more fashionable clothing, I wouldn’t part with it!
Maybe that’s why it’s such a habit for me to just press that button and dose without stopping to think sometimes. That’s pretty much what I did last night. Yes, again!! I was SO angry with myself that I probably shot it a bit lower just from that emotional surge, ya know? (Tell me I’m not the only one who does that…intense emotion can drop my sugar! Do any of you experience that??) I was up watching TV by myself since Tommy had gone on to bed. He’s staying super-tired from all his projects out in the garage so after trying to settle in with him, I found I just wasn’t sleepy yet and thought I’d catch up on something from my watchlist on Hulu. I had the munchies for some reason and wanted to eat a few chips. I rarely buy those, but heh there was a special at Kroger, so I had some of my fave bbq chips. I faintly recall bending over to get them out of the pantry while simultaneously pressing my trusty button…and I have no clue what I gave. After I realized what I’d done and was in the middle of trying to treat myself for the hypo (about 20 minutes later) I looked on my pump to see how big a dose I’d given. SEVEN UNITS!! What?! WHY on earth did I do that?!?! I don’t even know other than it is such a habit for me now!! Especially after that last episode doing this kind of thing?!?! WHY!?!? I could have just strangled myself, really. SO angry!! And scared. Not a good combination when you’re trying to raise a low blood sugar.
If any of you Ds out there have had this sort of issue, how did you STOP yourself from going auto-pilot with your pump dosing? I am thinking of putting some tape or some sort of fuzzy sticker on the button so I’ll stop and think about what I’m doing. Maybe I should just put the whole pump in a ziplock or some sort of case so that I have to take it out to use it? Have you tried any tactics like that to retrain yourself to test first or at least THINK before you dose?? PLEASE don’t tell me I’m the only one who does this?!?!
Tommy commanded (yes, he did!) me to go pick up a glucagon. I haven’t yet, but we will probably do that tomorrow. I’m getting ready to call the endo’s office right now for a prescription AND to find out if they can help with another insurance-related problem that is making me furious. Maybe I’ll share about that once I ever get any hint that there’s a solution. SIGH
Happy (& SAFE) weekend to you all! Happy Mother’s Day to all you moms.
Go enter to win an all-new design diabetes-junk case! Supposed to fit ALL types of meters! Now that would be awesome!
Okay folks, once again, Friday is for us PWD’s (that’s People With Diabetes) but as always, I hope you will all enjoy the post and it will get you thinking about things maybe for the first time!
I just read this article that initially sounded like yet another “we’re closer to a cure for diabetes” thing, but when you got into it, I found that it’s about getting closer to a way to detect future development of T1D and then possibly a way to prevent it from ever developing.
You can read the article here: Type 1 Diabetes Breakthrough: Scientists Identify Key Molecule Targeted By Immune System
See what I mean? The title is like “DIABETES BREAKTHROUGH!” and you’re all like “WOW! YAY! YIPEE!” then it just tells you they’ve discovered a fifth molecule that is attacked by the immune system during the development of type 1 diabetes.
depressing letdown Yeah. I mean, that’s great news and obviously it’s progress, but for me, it is definitely a little anticlimactic!
How does it make you feel when you hear news about a possible cure for diabetes? I’m not talking about the okra-water cures that are constants on Facebook. I mean the news reports from legitimate sources researching a cure. What goes through your mind? Whether you are a diabetic or not, I’m interested in how that makes you feel.
For me it’s a mix of emotions. I’m usually like, “Yay. Thank God those coming behind me might be spared living with this nasty disease.” I never feel hopeful of a cure for me. If you ever look at the clinical testing sites, they want people who were diagnosed t1d within the last year or two, or maybe sometimes you’ll find a study looking for people who have had t1d for as much as ten years, but forget being eligible if you have had it over 20 years. I know this isn’t the case, but to me it feels like they’re saying, “Oh man, you’re practically dead from it already. Sorry, we can’t help you.” Pshhh! Sorry… did I shock you with my killer negativity? Yeah, I apologize. It sneaks out sometimes. grin
So how do you feel when you see things like that? Are you “new” enough to have hope that a cure will be found in time to benefit your life?
If I’m totally honest, my conspiracy-theory self thinks there is already a cure, but it is being suppressed because just think of all the money that would be lost if we didn’t have to pay out big bucks to live?? See? I have this completely pessimistic side and she comes roaring out when it comes to stuff like this.
ANYhow… it IS encouraging that they are learning new things about how diabetes occurs and which genes might be responsible for the misfire that causes our immune systems to attack themselves. Really, guys, it is. I just can’t get too excited because progress is so slow and it’s really already too late for “a cure” to save me.
Heh.. I was telling some friends last night that I’ve had diabetes for so long, I don’t know any other way to live. If I got cured right now, I wouldn’t know what to do with myself. How do you go from spending every waking moment calculating and figuring out food values and dosages for everything that crosses over your teeth and trying to decide how this or that activity will affect your fickle disease to … well, to NOT worrying about those things constantly? Ha ha… I guess it’d probably be a lot easier than I imagine, but wow… it’s just not something I can really fathom.
I’m gonna close now, but something has been on my mind that I want to share… a couple of weeks ago, I was talking to a friend while waiting for a low to pass so I could drive home. (fyi: don’t drive when your sugar is low, ‘kay?) I was explaining something or other about dealing with diabetes when she said, “I thought your pump took care of that.” I’m pretty sure I contained my dumbfoundment enough that I didn’t bump my chin on the floor, but I was really stunned that she didn’t understand any better than that.
I guess I just assumed she’d been around me enough to realize, but I guess that’s not the case. Or maybe I had never really discussed the finer points with her specifically? I dunno and really, maybe I shouldn’t have been so shocked, but I guess it really floored me that she thought my insulin pump was essentially like a cure. That as long as I was on the pump, I didn’t have to worry about the disease anymore.
WOW! People of the world! AN INSULIN PUMP IS NOOOOT A CURE!! It is merely another tool in the arsenal that helps us manage life! I guess I should admit here that I HAVE used the term “external pancreas” to describe the pump to people before. Now I’m rethinking that!! I can’t assume that people understand that while a pump is MUCH MORE like that than treating with MDI (multiple daily injections) for most of us, but we STILL have to calculate everything, still have to manage the unexpected, unexplainable lows and highs that can happen. We still have to deal with going into DKA (diabetic ketoacidosis) if the cannula kinks or we put the port into an area with scar tissue that won’t properly absorb the insulin, or we sweat too much and the adhesive comes loose and the cannula pulls out or… I could go on with a list of possible things that could go wrong, but you get the picture, right?
That’s part of the reason I am writing more about diabetes here than I ever have before. I believe this wholeheartedly:
I have diabetes. That’s me, I am a PWD, a Person With Diabetes, but diabetes, no matter how hard it may try, does NOT have me! It doesn’t define me. It makes me strong, makes me tough, makes me determined but it will not defeat me. I may die from the blasted monster, but it will never control me. I want to live my life to the fullest, be all I can be, yadda yadda… and diabetes may slow me down, it may make me do things a little differently, a little more cautiously, but it won’t keep me from doing what I want. It may put me in The Pit (depression) for periods of time, it may make me more susceptible to The Pit, but it won’t keep me there. Never.
ahem Soooo…. how DO you feel about this?? Please share. I’d love to hear your thoughts! Let’s encourage each other, lift each other up, whether you are a PWD or not, if you know me, you have a vested interest in learning about diabetes, you have reason to be concerned about possible cures and other diabetes news. Chances are, someone you know in your own life (if we aren’t friend IRL (in real life) that has diabetes. It’s like a plague these days and we don’t understand it well enough to know why! Get involved. You don’t have to go join the ADA or JDF, but learn all you can. Be knowledgeable. What you learn could one day save my or another PWD’s life, after all!
Please share this post and share your thoughts here!! THANKS!
Acknowledgement: All images in this post courtesy of Type 1 Diabetes Community FB group
Hey y’all. I’m working so hard, trying to increase traffic here…build an audience, a subscription list, whatever else a successful blogger does. Most of the time, I feel like I’m just flopping around, splashing water into the floor, making a mess.
I see some steadiness in the amount of traffic, so I suspect some of you are just awesomely loyal readers and probably close friends who stop by often to see what crazy thing I’ve posted. I am so thankful for you!
I know I’ve said it before, but this blogging thing is a big deal to me. I started it after months and months of stewing and praying about whether I should even try. I’ve blogged off and on for about 16 years, so it seemed like the natural thing for me to do…try to monetize the thing I am so passionate about. I felt (and still feel, btw) that God was really nudging me in this direction and so, even though I didn’t feel completely ready, I took the plunge. I plopped down what little was left from our tax refund and started this site.
Looking back, a month later now, I see many mistakes. I think most of them are easily overcome though and not the kind that will break me or the blog. I still don’t understand stupid AdSense or why my husband can get an account with them like snap that and me, with my two (now three!) google accounts, can’t get any of them approved. I’m not sure I’m missing much though. I’m learning that AdSense isn’t the end-all-be-all it has been purported to be, so I have pursued other means of generating income through my blog.
Some of them I am pleased about, and some I will be glad when I can be done with. And no, for the record, I haven’t made a single cent so far. That really concerns me, but I have to remind myself how new it all is. I can’t do it all at once and I need to be patient.
But BOY, is that hard!!
Today, when I went to look at a “blogging schedule” thingie I got from the web, for today it says to post about relaxing. BAHAHAHA!! What is that even?!? I don’t have time right now to relax, and certainly not about the state of my blog. Some of these ‘blog helps’ aren’t really geared toward me, ya know? Many of the blogs in these groups are about how to create a successful website, how to find a niche to build, how to monetize and market whatever you are selling.
I just wanna share life with my readers. I want to encourage and inspire. I want my readers to leave feeling better than they did when they pulled up my site. I want them to find the courage to go on, the determination to stick it out. The comfort of knowing they are not alone, the peace of knowing someone else out here has been where they are. I want the person with t1d to find a friend, someone to commiserate with and rejoice in whatever victories we accomplish as PWD’s. (persons with diabetes)
I want the homeschooling mom to know she can do it and I know she can because I did it. I want her to know that the great mistake she feels she’s made is not the end. That she and her children are far better off just because she tried to teach them at home, whether she continues or not. And no matter what, as long as she is trying to do her very best for her kids, she is a winner!
I want that couple who is struggling with some sexual incompatibility or physical problem to know they are not alone. I want them to realize it’s okay to talk about it and that there are people out here who can help, both professionals and people like me who have been there, done that. I want that woman to know she’s not the first or only one to be facing what she is, and that she need not bury herself in depression and self-hatred or guilt because there is hope. I want to keep her and her husband from living the hell that we did for 30 years and to find healing and hope!
More than all this, I want people to know there is hope, no matter what the situation is, there is hope. There is peace to be had, no matter how big the mess or how damaged their soul, Peace is there for the asking in the person of Jesus Christ. I want them to know that it is because of Jesus that I am alive today. That I’m able to share and talk about the issues, struggles and problems in my life. Ultimately, I believe this is the reason God has been urging me to write.
I haven’t touched my book in over 6 months, but perhaps soon I’ll dig back into it. I still feel He is calling me to write it, but I’m at another crossroad about which direction to take with it. (ANY feedback would be appreciated on this, folks!!) The book has lived in my head for many years as a sort-of memoir, a story of my life and how I have dealt with diabetes, the depression and all the other physical and emotional side effects of having a chronic disease for so long. However, as we have come to this place of healing in our marriage, I feel THAT is also a topic that needs to be shared. It, of course, is much more personal, deeply painful but ultimately hopeful since our long journey through this has ended with our beginning the healing process. My conundrum is should these be separate or combined?
You probably didn’t know this, but I have a problem with compartmentalizing. ha ha! Meaning, I can’t do it. You may have noticed I began this post talking about the blog and now, here I am asking for input and suggestions for a direction of a book! I need help with my wandering mind, my rambling style of writing.
I know there are some writers out there who read here occasionally. I also know there are lots of readers who come here too. I want to hear from you! What appeals to you in a book? What topics are you most interested in? What are you most interested in learning more about? Help me out!
I look forward to a great discussion and some awesome feedback and suggestions! Let’s help each other!