Tag: type one
Pardon the drama up there, but I’m feelin’ pretty raunchy today. Not sure what’s up really. I’m achy and my sinuses are not very happy. I feel like I have been awake for a week straight. (but I promise you, I haven’t) I’ve slept almost all day and nope, I didn’t stay up last night. I was in bed around 11pm which is pretty normal for me. I slept fairly sound in spite of my Dex alerting that I was “high” for several hours. Max never got me up, so I probably slept better than on some nights.
I just have no clue why I’m so worn out and feeling so cuh-rappy other than my night of waiting for a high blood sugar to resolve!
The worst of it lasted for about 4 hours last night. I bolused for and ate a small bowl of cereal (Rice Chex–yay!) with unsweetened vanilla almond milk earlier in the evening. Later, I crashed, so I ate another yummy bowl. (seriously, it had been a few years since I’d indulged in cereal! it’s one of my faves!) Slowly, my sugar rose to a good level…and just kept going.
This isn’t mine. I didn’t snap it because I hate seeing a jagged line.
Don’t you hate it when your sugar is going up and all you can do is watch…and wait for the insulin to kick in? Ugh! I didn’t want to crash myself again, so I tried to refrain from rage-bolusing. So it wasn’t until much later that again, I went low. Not really crashing, but just gradually getting lower until finally. my alert went off that I was below 60. I’m sure most of that was due to it being the time of morning I am normally dropping lower slowly like that.
I got up and ate some peanut butter crackers and drank a little juice. I was so worn out though I just fell back into bed. I had taken my thyroid medicine a few hours earlier when Tommy went to work and I got up to fix his breakfast. And now, finally I have taken the rest of my meds, but I just feel so YUCKY!
I’ve been taking my thyroid meds with some vitamin C powder. Why? I read that it helps with absorption. I’m not sure yet if it’s worth the 8 carbs I have to bolus for the powder, but we’ll see when I go back to the endo. It’d be great if I could get on a lower dose of Synthroid for sure! Right now, I’m taking 175mcg and 200mcg alternately. Fun. (not)
The reason my head feels so crappy is possibly because Friday I met Tommy for lunch at Taco Bell where I got my usual Mexican Pizza combo. I really should have stopped after the pizza since I was feeling pretty full already, but I didn’t want to waste the tacos that came with it and Tommy was telling me I hadn’t eaten enough (like he knows? argh) So I ate part of the taco, which had sour cream on it. I stopped eating when I hit the sour cream, or at least I thought I did. I knew I’d gotten a little of it, but a teeny bit hadn’t been bothering me.
But oh, boy! Saturday morning I was a wreck! I had to drag out the netti pot, I was so stopped up. And we had planned to go with Corey and Mel to this thing in Bowling Green that day. It was an attempt to break the Guinness World record for most people simultaneously hanging in hammocks. I know, kinda weird, but it sounded fun and we originally thought the rest of the kids were going, but a couple of them along with Casey and Tay decided to go to King’s Island instead! hmph! Taylor’s birthday was Friday. I’d been trying all week to get up with her to give a gift to her, but we didn’t get to do that til Sunday because the child has been gone somewhere with somebody every single night/day. The King’s Island trip was part of her birthday, so we went without them and ended up being a party of 7.
We had a good time. We almost melted in the heat, but it was okay since none of us actually died. heh We didn’t break the record. The event just wasn’t organized very well and that may have been part of it. We fell almost 200 people short, but they did raise over a thousand dollars for their animal shelter. I guess it was worth it. Ha!
See? In spite of the 100-degree heat, we had fun. Who couldn’t laugh with this buncha nuts?!
And Mama had a good line most all day, too! YAY!
And almost all of us were really cool… Ha, ha, ha!
So yeah, I have been either busy with stuff or just feeling raunchy or dealing with another issue that I’ll cover in another post and I completely flaked out on last week’s frankly friday. Sorry, guys. Heh. Like there were any of you out there waiting with baited breath, right? Ha, ha, ha!!
Finally, I’m rocking a fairly steady line hovering in the 140-range. Thank God! I hate rollercoaster days!
For you guys either not yet hooked up with the DOC or with no “need” of it, the DOC stand for Diabetic Online Community.
I didn’t know such a thing existed for a long time.
Growing up with diabetes, I never had a support group or a peer group of any sort. My parents didn’t “do” diabetes conferences or fairs. They sent me to a diabetes camp the first summer I was diagnosed and I was so flippin’ homesick, I couldn’t have learned anything anyway. I heard a year or two later that this particular camp had not been well managed that year. That might explain why the counselors could be easily observed from our cabins after lights-out piled up on a picnic table smoking and drinking. Yeah, prolly.
So other than meeting a new friend named Erin that I know absolutely nothing else about (so I can’t find her now) and doing a really fun obstacle course one day, all I got from that experience was a severe resistance to ever attending any other such thing. Ever.
I know there are great diabetes camps today, but I think the biggest problem with sending me was that I didn’t know enough about the disease, I was newly diagnosed and I was severely homesick even when staying at a friend’s 20 minutes from my house. When they drove me 4 hours away to this camp, I was just miserable and cried a lot. Not really a great learning environment.
Then like I said, my parents weren’t really “diabetes” parents. By the time I had been diagnosed a year, my little sister had been diagnosed with epilepsy, so they kinda had their plates full. Mostly my poor mom, who dealt the most with all our medical stuff and doctors and calls from school because no one knew how to care for us. After I became a mom myself, I looked back in amazement that my little mama survived those years! I know she had to pick me up from school at least once almost every week. It must have been maddening for her. When my sister reached those hormonal pre-teen years, she began to have a lot more problems with seizures and so hopefully, I was more able to tend to diabetes myself by then.
[Diabetes Hands Foundation is an amazing resource for diabetes information! They were the main sponsors or creators of MasterLab that I attended in Orlando a couple weeks ago!]
Anyway, as you can see, my home wasn’t solely focused on my disease and honestly, my parents actually felt the diabetes was much less serious than my sister’s epilepsy. I overheard my dad once telling someone that since they knew what was wrong with me (a non-functioning pancreas, is what I assume he meant) but they didn’t know what caused my sis to have seizures, dealing with her medical stuff was harder. The general sense of what he said, as I recall it now, hearing it as a child, was that they didn’t have to worry much about me. There were treatments and ways to manage diabetes. And while that’s really true for the most part, it set up a really tense dynamic in our home where I was expected to do more, take care of more, be more responsible, and most of the time even be responsible for what she did as well as for myself.
[I was often given the idea (or told outright) that I was lazy so now, I sorta AM pretty lazy about a lot of things. The more tired I am, the less I care about getting other things done. Is this a result from childhood or more an actual tendency? I dunno..]
That’s a whole ‘nother story that doesn’t have anything (sorta) to do with this post, but let’s just say that diabetes was “my thing” so much so that once when I had my first extreme low when I was a sophomore in high school, my mother didn’t know how to use my AccuCheck meter and couldn’t test my sugar. She had no clue I was low and I wasn’t able to speak…words would form in my head, but never came out my mouth the same way, so I couldn’t communicate and she thought I was “putting on”, so I got bawled out during the whole episode. I would be chewed out at the endo appointments by them because my A1c wasn’t acceptable, then scolded by my mom on the way home for not keeping better logs. I DESPISED going to the endo!
[this is a hashtag used to help let the world know what it’s really like to live with diabetes]
We didn’t really change how we ate at home. The most glaring change I recall from diagnosis was that my usual morning meal of cheerios with about 2 tablespoons of sugar and milk with Nestle Quik was taken away. I don’t know what it was replaced with…I seriously can’t recall, but I do remember how much I loved that sweet grit that would be left in the bottom of the bowl and how much I enjoyed trying to scoop it all out with my spoon before turning up the bowl to drain it. I still love it even though we seldom have cereal in the house today, IF WE DO, and IF I GO LOW, that is what I’ll fix myself. The cow’s milk is replaced with almond milk today since dairy makes me so sick and it probably won’t be Cheerios, but I’ll still load it up with a couple heaping spoons of sugar and smile while I scoop that gritty sweetness out of the milk once the cereal’s gone. I know, gross, right? Ha ha! Too bad. I can’t help it. I still love it.
[Glu is a great DOC you should check out. Google them!]
Don’t think my mom was really negligent and didn’t feed us properly, the sugary Cheerios was my own doing. And honestly, I’m pretty sure I snuck the extra sugar into the bowl when Mom wasn’t looking. She just didn’t really try to change the whole family’s diet, which I guess was fair, but it sure didn’t feel fair when it came time for things like Halloween and Christmas and I got handed some nasty sugar-free crapola while my sister got the good stuff, ya know? Sometime I’ll hafta tell you about when I was maybe 9 or 10 and my aunt who, after offering my sister a bowl of M&M’s, looked at me and said, “You can’t have any because of your sugar,” and felt that took care of things. Sheesh!!
[BeyondType1 now has their own app, which I have been burning up lately! It lets you post your “D-identity” (whether you’re a diabetic or mom, sibling, etc of a PWD) and where you live so you can find Ds close to you!]
Any “new” thing or technology that we were offered or told about was pretty much handed to me to figure out, which lead to even more things that neither of them knew how to use or read or utilize to help me. Diabetes was solely and completely MINE. Diet-wise, control- or log-wise, whatever…it was mine and I wonder now how in the world I stayed out of the hospital as a kid!
[Did you know we have our own day? Actually, November has been deemed “Diabetes Awareness Month”…not that I’m super-impressed with that. So far it hasn’t really helped tremendously to get proper information to the masses, but there’s always hope, right?]
The only other time I was in the hospital after my initial diagnosis was when I was a junior in high school. We switched to a new endocrinologist who felt I really needed to be admitted for a few days. Looking back, I see this was his way of trying to teach me how to manage things better. It wasn’t that I was horribly ill or in DKA, it was more an attempt to help me understand the disease and how to manage it. The doc and the hospital were in Lexington, which is about 100 miles from home, so I was left there and didn’t see my family except for maybe once until they released me about a week later. However, my new boyfriend did come to see me a couple times. big smile Bless his heart, even that stuff didn’t scare him off because he still married me about a year and a half later.
[I always wish I had something like this to hand to people who say, “Oh, I don’t know how you do that! I could never give myself a shot!” Gag! If your only other alternative was death, I guarantee you could! rolls eyes]
Okay so back to how much I’ve come to love the DOC! There are SO many ways to connect these days. Like I said, it was awhile after I got online back in the day when having home internet was a new thing, before I ever realized there was any such thing as a community of other diabetics!
Once I found these mythical people, I was amazed to read about how people communicated and how they spoke of the things that had always been “weird” in my world, but were common in the world of the DOC. Other people got those hard, sensitive, bulky areas from years of pork and beef insulins. Other people had dealt with atrophy from those, too. I’d never EVER met anyone who had a clue what that stuff was! I soon learned I wasn’t a bad person for only changing my lancets when they started to hurt my fingers. I wasn’t a ‘bad diabetic’ just because I had been labeled “brittle” by the endos and other people dealt with being “brittle” as well. It was pretty amazing to find out I wasn’t alone. Even though I KNEW I wasn’t, when you don’t have contact, it still seems as though you are and for all practical purposes, you really ARE alone when no one in your sphere understands you as well as another PWD.
[The DOC spans all media and areas of the net these days. There are tons of apps from offering support to helping keep better records to calculating carb ratios! Do some research and you’ll soon have plenty to keep you busy!]
So really, these days? There’s no reason to feel alone in dealing with diabetes. The DOC has expanded and become invaluable to most all of us PWDs. I’ve only ever seen one person say connecting with other Ds hasn’t helped them. I agree that it makes me focus more on diabetes, but that’s never been a bad thing. The most important aspect of dealing with diabetes or any other chronic disease (or just LIFE, for that matter!) is having a positive attitude and knowing there’s always hope.
[Don’t get all offended! I think this is kinda funny. I’m pretty sure this comes from Anthony’s group called “Duck Fiabetes”. You might as well, laugh, right? You can Google this one, too.]
If you lose that, you’ve kinda lost the battle anyhow, which is why we need each other! What’s YOUR experience with the DOC been like? How did you find it and how long have you been a part of it? What do you feel it’s done for you and your management of diabetes? Do you have suggestions to improve the DOC?? What other diabetes blogs do you read?
Let’s talk! Diabetes support doesn’t have to (nor should it!) only come from other diabetics. That’s what I try to do here…educate everyone about living with diabetes! The more we understand, the better off we will ALL be!
Say what? Yes, I just read about this new stuff that could be coming out soon. Instead of depending on someone who is with you knowing how to mix and inject a traditional glucagon pack for you, they could just spray it up your nose!
That’s a pretty awesome idea! This company who’s been doing research, Locemia Solutions, has basically been working in secret on this stuff but is now sharing that they are ready to apply for all the FDA crapola to be put on the market!
For those of you who don’t know, THIS is the current and ONLY method for delivering glucagon:
About the worst they could do giving a shot of spray in your nose is give you a nosebleed, right? And how much less freaked-out might they be having to do that instead of mixing, drawing and giving an injection?! Let us know, any non-T1Ds out there…which would YOU rather do for your friend or loved one?
This was especially close to home for me this morning because last night, I did it again. insert furious face here I have had my pump for about 12 years now. I have NEVER taken a break from it, never opted to go back to MDIs (multiple daily injections) for awhile. Getting that thing really saved my life, and as much as I hate it sometimes…like when the tubing gets hung on a doorknob as I’m working in the house or when I’m struggling to find a comfortable place to wear the thing with some more fashionable clothing, I wouldn’t part with it!
Maybe that’s why it’s such a habit for me to just press that button and dose without stopping to think sometimes. That’s pretty much what I did last night. Yes, again!! I was SO angry with myself that I probably shot it a bit lower just from that emotional surge, ya know? (Tell me I’m not the only one who does that…intense emotion can drop my sugar! Do any of you experience that??) I was up watching TV by myself since Tommy had gone on to bed. He’s staying super-tired from all his projects out in the garage so after trying to settle in with him, I found I just wasn’t sleepy yet and thought I’d catch up on something from my watchlist on Hulu. I had the munchies for some reason and wanted to eat a few chips. I rarely buy those, but heh there was a special at Kroger, so I had some of my fave bbq chips. I faintly recall bending over to get them out of the pantry while simultaneously pressing my trusty button…and I have no clue what I gave. After I realized what I’d done and was in the middle of trying to treat myself for the hypo (about 20 minutes later) I looked on my pump to see how big a dose I’d given. SEVEN UNITS!! What?! WHY on earth did I do that?!?! I don’t even know other than it is such a habit for me now!! Especially after that last episode doing this kind of thing?!?! WHY!?!? I could have just strangled myself, really. SO angry!! And scared. Not a good combination when you’re trying to raise a low blood sugar.
If any of you Ds out there have had this sort of issue, how did you STOP yourself from going auto-pilot with your pump dosing? I am thinking of putting some tape or some sort of fuzzy sticker on the button so I’ll stop and think about what I’m doing. Maybe I should just put the whole pump in a ziplock or some sort of case so that I have to take it out to use it? Have you tried any tactics like that to retrain yourself to test first or at least THINK before you dose?? PLEASE don’t tell me I’m the only one who does this?!?!
Tommy commanded (yes, he did!) me to go pick up a glucagon. I haven’t yet, but we will probably do that tomorrow. I’m getting ready to call the endo’s office right now for a prescription AND to find out if they can help with another insurance-related problem that is making me furious. Maybe I’ll share about that once I ever get any hint that there’s a solution. SIGH
Happy (& SAFE) weekend to you all! Happy Mother’s Day to all you moms.
I guess that’s what was wrong with me yesterday. Maybe? I dunno, but I felt like some cow poo yesterday and pretty much just laid in the bed all day.
How sad IS that, y’all???
Actually, there were some extenuating circumstances. We went riding again Sunday afternoon. It was perfect weather and so we took the opportunity to ride! We had stopped to get some lunch on the way home from church, so we just had to change, check the tires and get our water bottles ready.
I ended up going low by the time we’d gone four miles…all of which were downhill. It wasn’t terribly low: in the sixties, so very manageable. I suspended my pump and “shot a Gu” (the way Tommy phrases using an energy gel (called GU (goo)) always makes me laugh) drank a little water and started off again. By the time we were halfway through what ended up being the entire ride (a little over 13 miles) I was feeling terrible! Just like I couldn’t get any energy even though my sugar had climbed to almost eighty, which is fine for easy riding and I had also taken another Gu by that time with my pump remaining suspended. I just felt plain ol’ crappy! Every time I exerted any extra energy at all, for instance, a tiny bit harder pedaling to go up a slight incline, I felt like I was just gonna pass out. If I did much more than that, I’d actually see stars.
Despite feeling nasty, I actually did better this time. I made it all the way back home, even pedaling up our continuous incline to the house. I think that section has been named “Stairway To Heaven” on Strava. It didn’t dawn on me until I dragged myself out of the bathtub that I was dehydrated!
Remember, I got dehydrated so bad a few weeks ago that my endo recommended going to the hospital for fluids. I was already sick that time so I wasn’t sure how much of the yucky feeling was from dehydration, but I now know that was MOST of the reason! I have never dealt with dehydratioin before in my life! I had no clue it could make you feel like you’re going to die. When I stood up out of the tub water, I felt a little woozy. Not unusual, was my thought, since the water had been as hot as I could stand. But by the time I had dabbed most of the water off (instead of thoroughly drying like normal) and stumbled from the bathroom to the bed, it hit me about the dehydration.
YIKES! According to this, both times I have felt this way, I was already in “significant” or moderate dehydration! If I look at the symptoms under “severe”, I realize what a bad state I was in because I also had the respiratory symptoms of rapid pulse and depressed respiration. Y’all, I had NO CLUE dehydration was so serious! And what the heck?! Looking at the “mild” symptoms, I now know why I have been freezing even when the thermostat says it should be very comfortable in the here.
Did you guys KNOW this stuff?!?!? Wow. I saw one graphic that said when you feel thirsty, you are ALREADY dehydrated. I don’t often feel thirsty and I sure didn’t during the bike ride. It seems my turncoat body just won’t give proper signals in any situation, not just when I’m hypoglycemic!! pththt
Check out this last one about what a small percentage of dehydration can do to your body:
No wonder it was wiping me out completely to exert the least bit of energy! I have GOT to learn to recognize the symptoms before I get to the point that I can barely walk. Honestly, it’s a miracle I even made it up the hills to our house.
I wonder if diabetes makes dehydration worse too? Do any of you know? I mean, I wonder if it effects us “harder” or maybe faster for some reason? More than likely, I have got to feeling SO bad because I was completely unaware of the symptoms. But you know how it is if you have t1d too, most everything seems to affect us in a more extreme way. I just wondered if it was true of dehydration as well?
Anyway, that’s sorta why I didn’t post on Monday like normal. I was wiped all day yesterday too. I slept most of the day, which makes me feel like a crappy human, but whatcha gonna do? I’m thankful to feel better today, but I gotta start making an effort to just drink more water. I feel like I drink a lot of water already, but apparently it’s not enough. I’m hopeful that if I can combat the dehydration, maybe, just maybe, I’ll start to feel better all the way around!!
I can handle that!
Chime in and let me know your experiences with dehydration!!